Hi all ,
I finished treatment beginning of April for tonsil cancer which had spread to tongue and tissue surrounding tonsil. T4a n0 m0 . Had 1st post pet scan in july which showed uptake, was so upset at the time ,had an mri 4 weeks later and was told they weren't worried were sure it was just inflammation or scarring. Had another pet scan beginning of October and just just got back from hospital checkup with results Saw the consultant radiologist who after doing the usual scope and examination has said everything looks fine ,healing well. This is now my new normal, and I dont need any more scans ,just visual checks . Next one in 4 months and being referred back to Ent ,who ill see in 2 months. Alternating every 2 months to begin with. Can't describe how relieved I am.
So anyone just starting treatment, its awful and brutal and you'll feel at your lowest, But as others have said ,although at the time you may feel there is no light at the end of that tunnel you're in. Keep plodding on ,that little speck of light will appear and get brighter .
Tracy xx
Tracy, I know how that worry just consumes, having been in a similar position with an avid scan. I'm so pleased all is well....Christmas next ......Jingle Bells 
