Healing after EBR

Izzy1984 23 days ago

3 replies
50 subscribers
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Hi all.

I'm 3 months from finishing my 33 sessions of radiotherapy for thyroid cancer.

Can anyone who had head and neck radiotherapy share a thought about healing of the inside of the neck please?

Basically I feel things happening inside of my neck (I had scans and nothing wrong inside at the moment so I assume healing) and would like to know if it does improve in time and what are the lasting effects of that healing process.

My neck feels tender and tight, I have tried some lymphoedema exercises but the morning after I was more swallen and in pain so had to pause that (tried 3 times and uncomfortable all 3 times after).

I don't want to leave it in case that tightness sensation stays with me forever (I hate it), but also I feel like pushing myself a bit too much is making me sick.

I have referral for lymphoedema clinic for end of Feb.

But I am scared that I'd I leave my neck without exercises it will forever feel tight and uncomfortable.

Please advise

All the best

Izzy.

Micky55 23 days ago

Unfortunately neck and throat issues are part of the new normal for many...we took a lot of punishment in the area...it does improve over time...Lymphoedema improves with massage...pain is treatable with Difflam, Oramorph, Gelclair, co-codamol etc., neck fibrosis is common, I have it...I just live with it...not a major issue.

3+ years since I finished and I still get the odd niggle...I was at my dentist for a filling 2 weeks ago...he noticed that I had some inflammation where one of my molars had been removed prior to CRT...a dental bone spicule had surfaced causing gum inflammation...and a sore tongue... it was rubbing on my tongue...now sorted...and being monitored.

Michael

Ally3 23 days ago

Hi Izzy

I have mild lymphoedema of cheeks and neck and I’m due to start 14 treatments of photobio modulation therapy. It also helps with tissue fibrosis so may be worth asking if your lymphoedema clinic has use of one of the machines and if you’re suitable for referral. It may help with the discomfort you’re experiencing.

Ally x

Micky55 23 days ago

Autologous fat transfer... AFT... is promising ....could possibly be an effective regenerative treatment for soft-tissue fibrosis, radiation-induced scars, and post-surgical or burn adhesions...

Michael

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