Swallow issues

CB22 20 days ago

3 replies
50 subscribers
168 views

Hi all,

I am 5 months post radio/chemo for base of tongue SCC.
progress for me is very slow. I still am fully dependant on the RIG and it’s getting me down that I may never eat or drink again.
Speech and language have told me to only try sips of water until I have another swallow test.
I am really struggling with even sips of water it just comes back up to my mouth/nose. Any advice?
I’ve had a course of steroids which has really helped with the pain so that’s amazing but I would just love to know that I will get there with eating and drinking.

Carla

Micky55 20 days ago

It does take some time and effort...I was PEG dependent for some months, lost the will to eat and drink, my wife, CNS and dietitian were immense in helping me on the road to eating solids... very small portions to start with... gradually built up to normal sized portions...I now enjoy most foods and drinks... alcohol free...an alcohol free Guinness was one of the first things I could tolerate... and taste.

Michael

Beesuit 20 days ago

CB22 said:
I am really struggling with even sips of water it just comes back up to my mouth/nose. Any advice?

Hi. Are you doing swallowing exercises.?

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

CatSW9 18 days ago

I was given these swallowing exercises to do every day during treatment and for several months after info.guyscanceracademy.co.uk/.../

September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story

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Swallow issues