We thought we were clear

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After a good clinic appointment with ent and no signs of my husband’s cancer in his throat ,and a negative biopsy on an ulcer we thought we were in the clear ,but fast forward 6 weeks ago ,a&e fluid on his left  lung, throat cancer has metastasised to both lungs near a heart value and near his transplanted kidney that I donated to him nearly 8 years ago ! Absolutely devastated ,got a phone call with the oncologist next week,to discuss possible immunotherapy,but his general health is awful so not holding much hope there tbh,St David’s are due to see us next week

  • Oh Netti. I am so sorry to read your sad update. Is your husband at home with you or is he in hospital? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • He’s finally home after a very long 5 week stay in hospital x

  • Thank heavens. Have you asked your GP about hospice at home? They were brilliant with my mother in law. They helped the family look after her at home where she felt safe and comfortable. The nurses were wonderful. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • The hospital have refered us to st David’s nurses local to us,so hopefully we can manage things at home x

  • Oh Netti I’m so sorry to hear your sad news. Hopefully you can come up with a plan either with the oncologist if your hubbys well enough to have the immunotherapy. Or a plan with St David’s so sad hugs 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.