A cautiously optimistic update

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Hello All, its been a while since I added any comments, I've just been trundling along since my treatment (T2 N1 M0squamous cell carcinoma treated with chemoradiotherapy) which was completed in October 2024, so happily passed my first year milestone. I'm fortunately able to say that all is good so far and my eating is as close to normal as I can remember so definitely no issues about that. I'm seeing the ENT consultant and Oncologist alternatively, 2 months apart.

Physically I'm really happy with things, my Lymphocyte count is currently low (0.69) although the consultant didn't seem too concerned at my last appointment. I have another blood test this week although she doesn't expect the result to be any different. Despite that I find that I'm still struggling with confidence. I find that I am very reluctant to plan anything in the future, Just in case....not wanting to tempt fate I guess. I wondered if anyone else was feeling the same way. Is it just the way things are after going through this? Someone on this site suggested the article 'After the treatment finishes - then what?' by Dr Peter Harvey which definitely helped. Maybe it just takes time. 

Best wishes everyone 

Andy 

  • Hi Andy. 
    yes time is the answer. The first year is the hardest my oncologist said he would cure me he also apologised that he would take a year out of my life.  But in exchange would  hopefully give me many more. He did both, we often say recovery is a marathon not a sprint you're getting there. The Peter Harvey article helped me and I gave copies to family and friend s. I was / am lucky  I’m a glass half full person and remained positive throughout. 
    start planning things for the spring and summer I always find having something to look  forward to helps. Try not to waster time thinking if what ifs think of the  what now’s. 
    best wishes 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you Hazel, I love really love the What Now, rather than the What if! 
    Best wishes to you 

  • Andy

    Sounds like you are doing really well.  2 years on and I still have trouble long term planning.  Planning for the next few days is fine, but looking out a few months is difficult.  I think it is something to do with the planning horizon of treatment - a few days at a time.  It is not a problem as I quite like to "go with the flow" an manage things as they come up and I think it may have something to do with living for the minute rather than planning to do things in the future.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Andy. As Hazel says time does help. I wouldn't worry about long term planning just do some short term planning. Something to look forward to really helps. I decided that I did not want to put my life on hold just in case so I started to plan a few things such as joining an exercise group, becoming a volunteer at my local library. I am retired now so have the luxury of time to indulge myself in things that I like to do. I decided not to put off things I really wanted to do but that doesn't mean long term necessarily. Like they say 'seize the day'.I thought 'such a waste if I don't grab my second chance by the hand'. Just start doing some easy things that do not take a lot of planning. Something that puts a smile on your face even if it is just pottering in the garden. When you are immersed in things you like to do thinking about cancer goes to the back of your mind as you can't think about two things at once. 

    Sending my best wishes

    Lyn

    Sophie66