Base of Tongue Cancer T4. I made the mistake of googling it

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Hi all, 

it’s stupid o clock at night. I can’t sleep. I was finally staged today, at the moment Im T4. N1. M0. Base of tongue SSC HPV positive, but the N might change due to a query on the Pet scan…

I felt so positive because the M was 0 and it’s supposedly a cancer with a good prognosis. Why did I Google it??? 

Does anybody else with a T4 grade have a positive story to share? Im in despair. Bloody well the dentist tomorrow for teeth out assessment. Ultrasound biopsy on Thursday. Chemo and radiotherapy looming. It all feels like Im in the most terrible nightmare. 

Sorry if this is the wrong department to post in or just too dismal. Im just looking to get my hope back.

Rachel

  • You're very welcome and certainly not bonkers hon! I reckon I'm the same - hard as nails on the outside but a filling of pure mush when others are kind. I'm pretty seasoned to how hard it all is now, but still have my moments.

    Anything you need advice with, or just a chat, fire away as there's always others around on here. If you're a night owl like myself, I also live on the Awake and up all night thread, often till the early hours. You may be surprised how many folk can't get a decent night's sleep after a cancer diagnosis and just need somewhere to get it out of their system. Big hugs xxx

  • One word, well 2, Nightnurse tablets.....HH has done well with the sleeping but me, not so much - always have struggled if there was anything to worry about!!!  I ration myself to 1 tablet 2 nights a week...but oh, the bliss!!!!    I even checked with my UK Dr about 5 years ago (he gave me some sleeping tablets which I loathed) and he said limited use is fine!  And no nasty side affects like the proper 'sleepers'

  • Debbie, I've only had one sleeping tablet in my life - the nurse gave me it after my cesarian section and it caused crazy hallucinations. Or it could have been sleep paralysis but I never took another after that particular experience!

    I've got some herbal tablets in the cupboard that are supposed to induce calm and sleep, so I might give them a whirl. Thanks hon xxx

  • Hi

    sorry just realised old post  

    Head and neck I cancer aren’t staged the same as other cancers. T4 indicates tumour size not prognosis T 4 is tumour between 4-6 cm I was T2 which indicated 2-4 cms I had 7 lymph nodes. 7 years later I’m still here living a fab life. Treatment is hard I can’t lie but hpv tumours respond very well to treatment with a success rate around 94%.  Stick with  us  keepoff dr google. 

    hugs

    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  7years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Nytol gave me very weird dreams!!!

  • Then I'll avoid Nytol like the plague. Thanks for the warning.

    Righto my lovely, I must crack on with my chores. They say there's no rest for the wicked - which brings me to the conclusion I must have been an utter swine in a previous life! Laters lovely xxx

  •  A lovley one I am sure!!!  x

  • So out of 150 glands on each side, he only has problems in a small number of them???  Or am I over simplyfying?

    Yes and No

    But the PET shows something both sides of his neck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Debbie. I can't fathom how you got hold of that photo, but that's me on Bridlington beach, circa 1978! And I absolutely adore our porcine pals, so thank you xxx

  • ha ha, glad you liked her.  Happy Monday and Kalo Mina as they say here (good month)