Left tonsil cancer

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I have had both tonsils taken out and a neck dissection in July.  30 treatments of radiotherapy and now in my 6 th week of recovery. Can anyone tell me if this is normal and will go back to normal place in mouth? My  uvula and roof of my mouth seems to have dropped and it’s nearly dragging on my tongue and it makes my heave sometimes. It seems to have narrowed my ability to swallow thicker foods like mash. Is this part of the recovery and will it all move back up where it’s supposed to be?

  • My  uvula and roof of my mouth seems to have dropped and it’s nearly dragging on my tongue and it makes my heave sometimes. It seems to have narrowed my ability to swallow thicker foods like mash. Is this part of the recovery and will it all move back up where it’s supposed to be?

    Hi. Well done on getting through. 
    I think you will find that your uvula has practically been zapped to a stump which will make your whole soft palate look lower. You’ve lost the dangly but for ever but everything else should start to look less swollen in time. The gagging is made worse by sticky saliva. 
    Mashed potato is really hard to swallow this early. Try sweet potato instead. Your throat muscles will be weak so you need to strengthen them. Are you doing g your swallow exercises every day? That will help rehab. 
    Recovery is a marathon. Just take your time. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks Dani for replying. I can still see my uvula just about but it seems like the roof of my mouth has lowered. Is this just swelling and will go back in time?

  • Sounds like it. When is your next review? You could ask then but for now it doesn’t sound anything to worry about. Work on your swallowing. Six weeks is still very very early. I wasn’t happy with my eating for six months. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you for replying. My next review is dec 10th, so I will ask then. It just frightens me as it’s so low and uncomfortable to swallow

  • It just frightens me as it’s so low and uncomfortable to swallow

    Try not to be frightened. Your throat has had a real battering and takes a long time to recover. Most of us do very well though we are never exactly as we were

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi my uvula melted away. The swelling will go down but if takes time I was a good  6 months before I could try mash potato it’s too sticky. Sweet potato is easier but that took time. Poached  eggs were one of my main sources of protein. They slip down. Then eventually andded smashed  avocado. I ate weird combinations of food for a long time it was all about calories not enjoyment for me. Double cream added to soups cream cheese tj scrambled eggs. 
    do your swallow exercises and jaw ones regularly I still do mine even now and will do forever they are routine now  

    hugs 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks Hazel, that’s reassuring to know.