I’m 4 weeks post RT. Going through the side effects but getting better. Can eat some food but can’t gain any weight although I’m not losing any weight anymore. I’m experiencing a weird symptom when I’m eating solid food. It seems there is a gland or something on the inner portion of my left jaw that swells like a small bubble, very painful. Shortly after I stop eating it disappears and there is no pain. I’m wondering if it’s a salivary gland that’s damaged and closed. Not sure if anyone else has seen this
I'm 12 weeks post RT treatment and have been experiencing a similar problem for about 14 weeks. Every time I attempt to eat, the roof and sides of my mouth break out in small painful blisters that eventually dissipate after I stop eating. These were eventually diagnosed as superficial mucoceles caused by damage to the minor salivary glands. My head and neck cancer team believe this is an unusual side effect of radiotherapy treatment which should right itself with time. Meanwhile I've tried using an oral steroid mouth wash, which didn't help, and have now been prescribed pilocarpine to see if stimulating saliva production makes a difference.
Not sure if this helps at all, I've been meaning to write a post about this in case it's useful for others, so I'll try and get round to doing that sooner rather than later.
Hi I had water blisters about three weeks after finishing RT. They seemed to appear near times I was about to eat and burst a while after. They were so painful and at times caused me to not being able to eat. It's as if they knew my feeding times. I used the usual pain relief that was suggested with ulcers during RT. I took them July last year and they disappeared end of November thankfully. The oncologist and consultant said it was a rare side effect that only two other patients had taken . Haven't had them since and the salivary gland was also mentioned. Xx
That's good to know that this does disappear eventually, it's really debilitating. None of my cancer team (ENT surgeon, oncologist, head & neck nurses) had ever seen this side effect before, so it's definitely pretty rare. It was an oral medicine consultant who eventually diagnosed the condition in my case.
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