Cancer, base of tongue and one node, stage one. Just finished 5 weeks of radiation, two every Friday over the Monday to Thursday treatments. I thought, in the very beginning, how challenging can this be? Well, I received an eye opener. Between the thick saliva, dry mouth, skin issues, throat pain and loss of taste Ive handled as best I could. My main concern is the weight loss, 20 pounds so far, and falling. I’m forcing food down and drinking protein drinks but can’t hit 2000 calories or 100 G protein. Can anyone suggest a high impact suggestion? I find if I drink too many Boosts, Fairlife I start to feel nauseous. I struggle to swallow anything of substance. It’s not that I can’t swallow. It’s more that my mind can’t wrap around swallowing something I can’t taste. Any advice would be appreciated.
Don - Canada
No. You can drip feed with a pump via an NG. I did that. I fixed up the pump at bedtime and it slowly slowly got a litre of the vile feed in while I slept. Some people fed through the day carrying the pump and feed around in a rucksack.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oh wow - I've never heard of that ! Will see how I go over the next couple of days. Just finishing a glass of strawberry En-shake. I make it with almond milk now, which doesn't seem to induce the nausea as much as cow's milk, but I don't think it contains as many calories. Made with cow's milk, each one contains 695 calories, which I suppose is quite a lot. If anyone had asked me to drink a straberry milkshake before the cancer, I'd have thrown up at the thought of it even then lol !
If you can swallow a shake try banana/avocado and peanut butter. Make it with whatever milk you have or with ice cream. You can get 2K calories in a pint of that. Add syrup or honey if you want it sweeter.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I don’t react well to cow’s milk either. Someone on here recommended Huel vegan shakes which I get on well with. I use them as calorie top up. ‘Only’ 400 calories…but a nice way of getting 400 calories.
Liz
Hi Lindylou. I asked if they could put in a RIG while I was having radiotherapy as I was having a tough time of it. My doctor told me that it was not really an option as it was an operation that needed a bit of recovery time and not recommended doing during radiotherapy. However na NG tube is definitely an option during radiotherapy as no op required.
Lyn
Sophie66
I've just managed to eat a banana with a couple of scoops of ice cream ! Have only had that and half an En-shake today which isn't much, but an improvement ! Love peanut butter, so will give that a try. Thanks !
Hi Sophie,
I just can't bear the thought of the tube going down my throat as it feels so restricted now that I've got a fear of gagging and choking. I've had a camera scope up my nose and down my throat quite a few times, but that was before my op and the radiotherapy. Guess I'm just being a wimp, which isn't me at all ! I've had half an En-shake today and actually managed a banana and a couple of scoops of ice cream, but unfortunately, that's probably not enough.
Funnily enough, a friend mentioned them to me the other day. Will give them a try. Thanks, Liz !
Thanks for the response Linda. I really hope things pull together quickly for you! I tell you, in the morning I feel like I’m winning the battle, by the late afternoon I’m getting my butt kicked. Trying to push the cals but it’s a challenge. Take care Linda, our thoughts are with you
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