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Tonsil cancer T2N0M0 neck dissection 47 lymph nodes all clear.TORS robotic surgery to remove 25mm tumour, margin short by 1.1mm due to carotid artery.

Went back today for check up  , 8 weeks post op. Still having some issues with pain by tongue. This had to be cauterised due to haemorrhage.

Consultant checked and said scar tissue is very tight which is why I can't open mouth very far. The have given me a Therabite machine to strech scar tissue and strengthen my jaw. Anyone else used on of these.

  • Consultant checked and said scar tissue is very tight which is why I can't open mouth very far. The have given me a Therabite machine to strech scar tissue and strengthen my jaw. Anyone else used on of these.

    I haven’t but I know people who have done well with these. You have to be absolutely rigid with your routine as trismus can be permanent. 
    hugs. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I've got to use it 5 - 7 times a day. 

  • How are you finding it?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • They only gave it to me today, so I will let ypu know. They went through it all on how to use it. My speech therapist had it with her because I'd already spoken to her on the phone. 

  • Thanks....look forward to hearing how you get on with it

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Like  Daninsays we both know people who have successfully used the therabite machine ,they found it difficult tonstart  with but persevere as trimus can  be permanent. one of the ladies never thought she would be able to eat out but she goes away several times a year and eats normally well as normal as any of us can. It’s not a quick fix but stick with it 

    hugs Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.