Mind blown

Hi speaking as a mum with one daughter (44)  I know our daughter would want to know the serious news. Then let her make the decision. 

that’s my thoughts. 

Hazel xx

Had a call this evening 

they are still planning the trachi next Tuesday 

I’ve literally lost all fairh

Hi just go with the op it will hopefully ease your symptoms. 

Hazel 

I agree with Hazel, only a few days in hospital but a lot of added security

It’s to help with breathing

swal will be worse they say

Spencerbear said:

It’s to help with breathing

Yes you are goingto need it. But don’t panic. From what I’ve heard with other patients here and with my first husband you get used to it pretty quickly 

I’m hoping for immunotherapy 

I have been accepted with the correct marker

Spencerbear said:

I’m hoping for immunotherapy

There have been good results. Fingers crossed. Get onto the team and keep pressing to get started. Get your GP and PALS involved if you have to 

Hello Spencerbear,

The immunotherapy option sounds positive if you have the correct marker. I really feel for you and wish you luck. My mother has been having immunotherapy and is possibly about to start radio therapy again. Strangely they previously said she wouldnt be able to have any more. I sympathise with you with all the changes of decision. I wish I knew a bit more about it all. 

I hope you get some support from friends or family. Sometimes our loved ones shy away because its so hard for them to watch you go through it. As a support to my mother I try my best but know I cant fix the problem, Its so tough. 

Sending love.