Change again
not sure I can take anymore.
Due to go into hospital 1st April for debunking and possibly trach
just back from hospital
last scan last Saturday had changed everything tumour too big to debulk
now not curative yet last week it was
im not swallowing great
feeding by peg only
been fobbing me off since dec
now await a call for how long I have left
why is this happening again and again
I know you care for your husband who is older than you but do you have somebody to support you?
Can somebody arrange a brief respite for you in a local hospice while arrangements are made for you at home?
I’m so sad for you. You’ve been given false hope at every turn. It’s time for your GP and nursing team to step in to help.
Hugs
Can I ask somebody in MacMillan to contact you? Maybe there’s some good advice they can give you to point you in the right direction?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I currently have a mcmillan
I didn’t mean your CNS but the organisation. Might be able to steer you to where you can get more help.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Yeah been in touch with doctors
Ok. I am so so sad for you. I know that doesn’t help much but I just wanted to say.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Oh dear like Dani says I feel sad for you as well.
Hope you get some respite care set up. Do you have family who can help you ?
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Only 1 daughter lives away and works away a lot
Dear Spencerbear,
I am sure they will sort out things for you so you have comfort and peace of mind. It sounds like mistakes were made but all that matters now is you feeling as good as you can for as long as possible. I was very sorry to read this latest post and my thoughts are with you.
Patrick xx
Hi speaking as a mum with one daughter (44) I know our daughter would want to know the serious news. Then let her make the decision.
that’s my thoughts.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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