Just an update to say that I had my 2nd surgery done on Monday the 23rd September, more tonsil tissue removed and a Neck Dissection. Woke up in the ward and didn't sleep a wink all night (too much going on.) The next day I was discharged! I have to have the staples removed on Saturday 28th September (just 5 days after surgery.) Then, I have my follow-up appointment on Thursday the 10th September to hear the results of pathology and to find out if I need further treatment! the surgeon/consultant seems to think I may have to have sone RT, but won't know until the results are back. Fingers crossed all will be well
Hugs to all.
Hazel x
Hi Hazel thanks for update if you do need radiotherapy there’s enough of us on here who have walked the walk will happily help with tips.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
Fingers crossed all will be well
My fingers are crossed for you as well
Path results are being done nice and quickly too
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Yes, thanks Hazel. This is always my first port of call, I'm afraid to say that my assigned 'cancer nurse' has been no use at all, she never answers her phone and when I leave a message, she never returns it so I've given up on her.
Hugs
Hazel x
she never answers her phone and when I leave a message, she never returns it so I've given up on her.
You should bring this up with your consultant at next review
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
I did mention it to him once and he just said, oh that's unusual for her? But I'e not mentioned it to him since.
Mine was always around somewhere at my reviews. Catch her and make sure you have the right contact details
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
make sure you have the right contact details
I do have the right details because she says who she is on her outgoing answerphone message. It's fine, there is a good support unit for cancer patients at my hospital, so I can go there if needed, but I mostly just come on here and talk to people who have actually gone through it themselves. I think that no matter how good medical staff are you can't beat talking to someone who actually knows exactly what you are going through. I'm having my staples out today! Thanks Dani, hope you're good.
Hugs Hazel x
But Hazel, it’s not fine really is it? At the end of the day this person is being paid to do a job she is not doing if she never answers her phone and, worse, does not respond to a message left for her. It’s not fair to patients or to colleagues who have to pick up the slack. Do you have a PALS service you could take it up with?
Liz
I do have the right details because she says who she is on her outgoing answerphone message
My Point was that if you actually asked her F2F she might feel guilty at ignoring you in the past. Have a go at the consultant again too
As Liz111 says....it's her job.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007