Salivary Glands - or lack of working ones

  • 3 replies
  • 32 subscribers
  • 145 views

I saw some info along time ago about research into repair - does anyone know if this has made it to clinical trials please ?

  • This is Elaine Emerson at Edinburgh university. After the initial fanfare i haven’t heard anything. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • How are you finding your saliva? Mine is pretty acceptable but I have worked at it. 
    Night time can sometimes be a problem 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Dani, it's for my husband. He's 9 years on from treatment and generally manages well with the dry mouth, but it's having an impact on his teeth now and he's fed up with how it limits his eating, even with a drink

    We're waiting on a restorative dental appointment after some teeth literally crumbled, but it's a long wait. High fluoride toothpaste and a coating from the dentist each visit can't fully protect against having very little saliva, sadly

    I was hoping there had been some progress

    • Sue