Day 1 update and all the mouth washes

Brush teeth first thing  

Difflam three times daily while I was well then half hour before trying to eat when pain hit me then back to three times a day when I was using feeding tube

Caphosol and Gelclair four times a day none of these at the same time or straight after one another so just have to slot in when I could  

Soda bic. When mouth felt sticky and awful  

Pain meds by the clock when I started to need them  whether I felt pain or not. Best to stay in front of the pain  

You can start to see how much time it takes so when I needed tube feeding I did it by pump at night. 
Brush teeth last thing and mud day if I remembered

I I made a list pinned in the kitchen wall which I ticked off. 

Hi 3d Man

Chemoradio is a long day.... sometimes chatting to other patients can be beneficial and helpful for passing the time 

Pain management strategy got ramped up after week 2, then the pain hit harder.... but not everyone suffers badly... some do get off relatively lightly.

Libby app is free.... newspapers, magazines and books available 

...safe and easy to download.....UK library service 

Peter 

I used a LOT of caphosol, especially after meals and if my mouth felt icky.. if you don't have any then salt/bicarb will do.. clean teeth thoroughly and use interdental brushes if you can, and while you can.. if/when your mouth gets sore swap to a baby soft toothbrush and Oranurse  toothpaste, and skip the interdental..  just try to keep your mouth as clean as possible while you can, as it will stand you in good stead if / when things get a little tougher.. It is all a bit overwhelming at first, so try to make list of things you need to do, in order.. 

hope everything goes well for you.. 

I was on standard pain meds (paracetamol, ibuprofen, Oxycodone and patches) which I ramped up over the treatment.  Always took them by rote and staggered them to try and level out the pain suppression.  Paracetamol was good about 30 minutes before eating.   I did have oxetecane to try and help me eat, but it was fairly useless.

At the same time I did salt and bicarb mouthwash every 4 hours juggled around food etc. 

I also used E45/Aloe Vera gel around every 4 hours. 

I managed throughout to use duraphat and an electric toothbrush with a super soft head, but nowhere near 2 minutes brushing (even now).  I found I could not clean my mouth with my tongue after eating so the brushing helped with that.

I use an app called "My Therapy" to track and remind me of the meds.  I can also track a whole range of symptoms and feelings which was quite useful to see how things hit you and when as well as how you were coping with them.

Thanks Peter, I'm really hoping for the light touch but in the end it will be what it will be. I've just checked out the Libby app and then had to find my old library card dust it off - and then I had to remember the PIN number for it. Then. eventually, I was in. It looks cool although no newspapers or magazines from my library that I could see. Thanks for the suggestion.

Thanks Loz, I will check out the Oranurse toothpaste as I've been warned that regular Colgate can be a real challenge as things progress.

Thanks Peter. That's useful info. I will check out the app you suggest. That's another thing - forgetting to do something on the to-do list at the right time.

3D Man said:

I will check out the Oranurse toothpaste as I've been warned that regular Colgate can be a real challenge as things progress.

It's the SLS in regular toothpaste including the Duraphat you will be prescribed. Oranurse was all I could use for a whole year. Getting a fluoride varnish from the dentist asap and every three months gives your teeth good protection 

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Good luck