Peer support and cancer: reflections from a Community Champion

shared.. 

Hi Dani

It is exactly the same in Australia. Our medical teams do not alert us to the existence of Head and Neck Cancer Australia or the more general Cancer Council that also provides support for head and neck cancer patients. No one in the hospital when I had my ops alerted me to these organisations either. I had to search the internet when I felt I needed peer support after my second op for jaw cancer. I was so lucky to stumble across the Macmillan site and then found this great group. It has been a godsend for me. I have since found the 2 organisations in Australia that I mentioned previously and have joined them. However I still find that I get the most support and info from this forum. If only our consultants would give us info on where we can get peer support as they are our first point of contact.

Lyn

I didn't realise it's World H&N Cancer today... (oops!). Love your blog and have just shared it x  

Hi Lyn. Spot on. It’s such a simple thing to do isn’t it? 

Thankyou. The more the merrier. I tagged my oncologist and he’s reposted it too. 

Thank you Dani these are great reflections on this hugely positive and inspiring forum.

I couldn’t agree more that guiding people towards peer support is so helpful and supportive. No one understands better than someone who is sharing the experience.

i don’t want to burden my family and friends and I think most have put it behind them. I still have lots of uncertainty and fear and I find my reassurance here.

Thank you to all of you who regularly contribute it means so much.

Joli93 said:

Thank you to all of you who regularly contribute it means so much.

 Thanks Joli93 

that means so much. 
I’ve battered all my X contacts with this today. I’ll use Mike’s when that’s posted too. 

Thank you too Dani....it should be shouted and and applauded.

Joli93 mentions that no one understands better than someone who is sharing the experience !  So very true and thank you to Joli for her support and Dani you bring so much support to us all.

Thank you