Week 1 done

Hi BL755, it's always good to get the first week over, now you know the set up, and what will be the daily routine for the next few weeks. Our carers are very often the forgotten heroes, with all the attention being on the patient, they are overlooked, with the great job they do. The side effects normally start to appear around week 3 or 4, don't suffer in silence, let your team know of any side effects when and if you get them, they will give you something for them. Just take things a day at a time, you will get there.

Ray.

BL755 said:

     Everyone says I'm doing well and look OK (not sure how your supposed to look) and I suppose I am. However I'm more aprihensive about the side effects than I was about my surgery,

Hi BL755 

once the first week was done I felt more at ease with the situation. I needed morphine by the end of week three and was admitted for an NG tube. It was my friend for eight weeks. I too needed to know everything about me and my cancer and my treatment while husband just put his head down and got on with it. I didn’t interfere with that. It was his strategy in the same that way I had one.  I’m the scientist of the two of us and did a lot of research. It’s the way I coped. 
A day at a time. Easter should have you seeing a chink if sunlight. Hugs 

Hi BL755

T2N1M0 tonsil cancer... Chemoradio finished June 2023

First couple of weeks were OK....went for a few meals out with my wife as we had an idea of what was to come.....week three my throat and mouth were quite badly ulcerated....solid food was impossible ....began to lose weight rapidly.....week four the radiotherapy team admitted me to Dundee Ninewells ward 32  for weight stabilisation....12 days later weight had stabilised enough for me to be discharged....luckily I had PEG tube insertion procedure prior to starting CRT....feeding tube was a life saver.

Not everyone has the same side effects ...some are lucky....others have to grin and bear it....but things do improve greatly in time.

Best of luck

Peter

HinYes I used to doze in the car as the weeks passed. Were all different my ng tube was fitted towards end if week 3 as swallowing and try8ng to eat was difficult. Once tube was fitted my trust don’t do pegs routinely  I just out my head down and got in with it. I had mucus ulcers galore and my neck burned. But here I am over  5 years later eating almost everything’s and happily living my life .

Any questions just ask someone will always try to answer 

hugs Hazel x