Hi everyone, haven't been around for a while, getting back to normal etc anyhoo seems my luck has run out and now facing the return of the old big C.
This time however, it's taken root in my right lung,and awaiting treatment plan but obviously no cure.
The reason I'm posting here is because lung biopsies showed it was an off shoot of the old Scc hp16 I had on my tongue back in 2019.
Because of that I was taken off the lung pathway and back at St James in Leeds on the head and neck pathway.
The real kicker for me is when I had ct scan back in 2019,it showed activity in the right lung,but was put down to possible infection.fast forward to Jan 2020,got all clear both lung and tongue.
Now in three short years I'm faced with T4 N3 Mb1,tumor gone into liver there.
Should I have had yearly scans after the first tongue cancer,I don't know, is it even protocol.
Anyways doesn't change owt,but mebbe we should check these things out ourselves, could have caught this way early but sadly that boats sailed.
Bugger all symptoms, slight tickly cough,but some breathlessness, which made me go to docs
The thing is,from what I've read from people,Facebook and roy Castle website, at that point of coughing etc you're looking at stage 4 more often than not.
Sorry to be a Debbie downer,but I think we need to know, all I ever worried about was getting sore throat etc and thinking oh god it's come back,well it had but now in my lung...
Hi Totolemar
Hell! I’m so sorry to see you back.
in the States they have PETs regularly post treatment but it’s all Insurance based.
Hindsight though
Tgere have been some good results with immunotherapy. I have a friend at The Marsden on an immunotherapy/vaccine trial and his cancer is stable.
I hope you get in something like that. Do let us know how you get on.
Hugs
Dani
Base of tongue cancer. Out of radiotherapy January 2019
Blog about my cancer.
https://todaymycoffeetasteslikechristmasincostarica.com
Hi Martin. Is that Christine Podesta. Done work with melanoma where immunotherapy is routine. I’d still contact the Marsden where you might avoid the chemo At least gave a chat with them?
Dani
Base of tongue cancer. Out of radiotherapy January 2019
Blog about my cancer.
https://todaymycoffeetasteslikechristmasincostarica.com
Hi,
It is yes,will keep in mind,seeing her 8/9 first time, everything said to me up to now was lung nurse, then head and neck macmillan people, so this will be first appointment with oncologist so I may be wrong on chemo in any case but will let you know,
Many thanks 
