Hello everybody and a big hello to Dani and Hazel and Blod. Well it was a year ago tomorrow I finished my treatment . HPV 16 base of tongue, I had 35 sessions of radiotherapy and 5 sessions of chemo, I was too sick to finish the 6th session. I find it hard to describe how awful it was, my consultant said I would take you to hell and back. Never a truer word said. I lost 3/4 of my hair, my weight dropped to under 8 stone and I was so very sick, they never managed to control my sickness , I just vomited for months. My PEG never settled, I think Blod we talked about this, I found the Peg traumatic let alone the treatment. Dani and Hazel I just cried until I was too ill to cry and this group kept me going. I gave myself a goal of eating a Xmas dinner, I was so weak and had no taste at Xmas. However now for the good news and yes it does get better. One year on I’m now travelling, enjoying food , not so much the spicy stuff but i can mostly eat anything. I’m working two days a week and life is mostly back to normal. It was one year out of my life which I was told would be the case. I get scared at times but I think having cancer leaves a legacy of fear. But anybody going through this very traumatic time, it really does get better. This forum was my lifeline ,thank you so much to all of you that helped me along the way. Those of you starting this very difficult journey , it does get better.
What a lovely update.
You’re right. The treatment is physically and mentally gruelling. But we all here try to give people hope. Your post does give so much encouragement and hope to others so a huge huge thank you for posting and remembering me too.
So many people here saved my sanity whike I was in despair so I stuck around to try to repay them.
Travel and enjoy your way through life. You deserve it. Hugs xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
