Hi all,
I am 13 weeks post chemoradiation.
I have just started to get these twinges in my neck nodes on both sides. It's not pain, more like something catching as I move my chin up and down. I saw my oncologist a couple of weeks ago and she said that my nodes had further reduced in size and that she could feel some thickening.
My rational brain says that this is probably fibrosis.
My scared, 5am brain says that this node feeling is the same one that I had before diagnosis and that things are growing back, already.
I have told my team and they don't seem unduly worried.
My PET scan is due in a couple of weeks. So, this will probably clarify things.
I am just wondering if anyone else recognises that catching/twinge feeling in the nodes?
Thanks
Steve
Hi Dani
My surgeon wasn't concerned at all but said the exercises are important.
I will mention it to my consultant on the 8th sept and see what she says. I am ultra thin at the minute so I do hope it's just that.
Thanks for the info though Dani
Kathy x
!
"External radiotherapy is a common treatment for many head and neck malignancies. Radiation-induced carotid atherosclerosis is a major late complication reported after external radiotherapy and occurs in 75% of cases"
Yes. We’ve talked about it here before. I don’t think there is too much to worry about in the first few years. All you can do is keep your blood pressure and cholesterol well down. I fully intend to pay for a Doppler ( GP won’t refer me and neither will oncologist) at five years.
What alarmed me was Warrior1 saying they had been told the artery was “stiff” … whatever that means.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Kathy. Try to find out what she means. Sometimes oncologists say things that make no sense. When I asked my oncologist about carotid atheroma he said, “My! You have been doing your homework “ Followed by “What would we do about it anyway?” I almost asked whether cancer patients weren’t worth stenting but thought better of it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Debbie
Thanks for passing on to me the explanation you were given. That makes sense. I wondered if it was scar tissue in my case and I think that maybe it was. The massage certainly fixed it for me when I got the cramping feeling.
Sorry to hear that you still get it though.
Lyn
Sophie66
Better get cracking with my shaker exercises
Hi Kathy.
I had to look this one up. Is that the head lift exercise from a lying down position?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Yes that's the exercise
Thanks Kathy.
No wonder you do it sitting up.
I tried these lying down. Good grief! There is no way I could keep my head up for sixty seconds. I must have a heavy brain
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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