Twinges in nodes

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Hi all,

I am 13 weeks post chemoradiation.

I have just started to get these twinges in my neck nodes on both sides. It's not pain, more like something catching as I move my chin up and down. I saw my oncologist a couple of weeks ago and she said that my nodes had further reduced in size and that she could feel some thickening.

My rational brain says that this is probably fibrosis.

My scared, 5am brain says that this node feeling is the same one that I had before diagnosis and that things are growing back, already.

I have told my team and they don't seem unduly worried.

My PET scan is due in a couple of weeks. So, this will probably clarify things.

I am just wondering if anyone else recognises that catching/twinge feeling in the nodes?

Thanks

Steve

  • Hi Dani

    My surgeon wasn't concerned at all but said the exercises are important. 

    I will mention it to my consultant on the 8th sept and see what she says. I am ultra thin at the minute so I do hope it's just that.

    Thanks for the info though Dani

    Kathy x

  • !   

    "External radiotherapy is a common treatment for many head and neck malignancies. Radiation-induced carotid atherosclerosis is a major late complication reported after external radiotherapy and occurs in 75% of cases"

    Yes. We’ve talked about it here before. I don’t think there is too much to worry about in the first few years. All you can do is keep your blood pressure and cholesterol well down. I fully intend to pay for a Doppler ( GP won’t refer me and neither will oncologist) at five years. 
    What alarmed me was   saying they had been told the  artery was “stiff” … whatever that means. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Everything was great thank you.

    X

  • Hi Kathy. Try to find out what she means. Sometimes oncologists say things that make no sense. When I asked my oncologist about carotid atheroma he said, “My! You have been doing your homework “ Followed by “What would we do about it anyway?” I almost asked whether cancer patients weren’t worth stenting but thought better of it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • I'll definitely ask about it again.

    Even when I lift my head to get up from bed I can feel it stick. 

    I'll let you know what she says but I am not seeing her until the 8th sept 

    Better get cracking with my shaker exercises 

    Thanks Dani

    X

  • Hi Debbie

    Thanks  for passing on to me the explanation you were given. That makes sense. I wondered if it was scar tissue in my case and I think that maybe it was. The massage certainly fixed it for me when I got the cramping feeling.

    Sorry to hear that you still get it though.

    Lyn

    Sophie66

  • Better get cracking with my shaker exercises

    Hi Kathy.

    I had to look this one up. Is that the head lift exercise from a lying down position?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Dani

    Sorry to take so long to get back to you.

    Yes that's the exercise but I do it sitting up and moving my head up and down. If I lay down I get bored  and do it too quickly 

  • Yes that's the exercise

    Thanks Kathy. 
    No wonder you do it sitting up. 
    I tried these lying down. Good grief! There is no way I could keep my head up for sixty seconds. I must have a heavy brain Joy

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge