Thought it was behind me

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Stage 3 tongue cancer (spread to one examined/removed lymph node). Tumor removal, neck dissection and radiation. First, for anyone reading this who is currently going thru treatment I want to give you encouragement...you will make it thru!  It is NOT easy, but it will end.  That being said, I need advice as I'm disheartened.  2 years post surgery was May, 2 years post radiation is August.  Was doing great! Just went in for yearly physical and my PCP felt a lymph node he didn't like.  Am scheduled for an ultrasound and fine needle biopsy tomorrow to see what's going on.  I totally realize I shouldn't jump to negative conclusions, but I can feel the node he's concerned with and it doesn't feel "good". Looking for anyone else who has been in this situation.  Guessing I can't do radiation 2x on the same side so what would my options be?  Thinking of all of you (us) that are going thru this miserable experience and pray that we will get thru it.

  • Hi Jen

    Sorry to hear of your predicament and fingers crossed that it is something that is easily fixed. The waiting is the worst. I had a different cancer to yours (jaw) and have had it re-occur twice in different areas of my jaw over time but that is not typical to yours which usually has a good rate of cure.  I had operations each time to remove the cancer and that went well and I am still ticking along fine 10 years after my first diagnosis.

    If needed your team will come up with a plan to get rid of the cancer again, but fingers crossed it is not necessary. You are right you can't have radiotherapy again on the same side but they will come up with options if required.

    Sending hugs

    Lyn

    Sophie66

  • HI Jen. Awful for you but let's hope it's something else. You can't help but worry though, can you?

    If the worst comes to the worst another dissection might be suggested, a more radical one. We have a member here, in the community, who is currently taking part in a trial at The Marsden for just what you fear. I know he looks in.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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