Hi
I've written before about my husband. He was diagnosed with Stage 3 nasopharanx cancer centred in the piriforme sinus. T4AN2BM0
The cancer has gone
We don't see his radiotherapy specialist until July 31st.
He's suffering with feeling so low, like there's no hope. He doesn’t feel better, every day is the same. He lost hope he'll ever be better. Also the Oxycontin is affecting his eyesight so he can't read properly which he loves; the blurred vision makes him feel tired and depressed. He sleeps a lot. Taking the Oxycontin causes him to cough a lot as occasionally the tablets get stuck; it's exhausting for him and we know we're not supposed to crush them. He's got no energy to do the exercises the Nutritionist wants him to do.
He started Setraline about 4 weeks ago. Originally he was on 50mgs; he's now on 100 mgs daily. We know it takes about 6 weeks to get into his system properly. We'll be going back to see his GP then - I think she wants to see how he is with a view to possibly upping the dose.
He's so very low. I don't know what to do. He can't see an end to it, he's depressed and occasionally wants to end it all. We do have access to a psychologist but he's very anti seeing her, especially as the last time we were due to see her, she turned up 30 minutes late
Any advice would be gratefully received.
Thank you x
So sad to hear about your husbands awful depression after putting his life and soul into coping with a dreadful treatment. Macmillan offer some free counselling if you feel he could benefit. Give them a call. There is info here https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/bupa-counselling-and-emotional-well-being-support
Thus essay by a clinical psychologist involved in cancer care is definitely worth a read too
He does need professional help. In these parlous times we have to be extra proactive. It’s good he has you to fight his corner.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hello. Sorry to hear how low your husband is feeling. After my treatment had finished, in the weeks of feeling cast adrift & struggling to see how I would ever feel joy or hope again I contacted Macmillan live chat. I had been having very dark thoughts & reached out for help. After a phone assessment I was offered 6 free counselling sessions. I found them extremely helpful & would highly recommend them. Could you suggest this to him?
Thank you. We have the support he just won't take it We have the essat you suggested x
Would he read this forum?
Because there is life and a good one to be had after this terrible treatment. Lots of us here are living proof.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi. I had a similar cancer, tumour in the Prirfossa. I'm 8 months post treatment, pump feeding still cannot swallow safely, very little taste no salivary glands still!! Lost 3.5 stone!
I had some black, black days, some very tearful days, days when I barely moved. Its a very nasty form of cancer, you cannot avoid your throat! I decided against the Setraline and focused on getting out and trying to walk. I have Flo, my highland terrier, who was a great motivator at times.
I had a great network around me who practically did everything for me for months. I look back now 8 months later. I have made huge progress so has your husband I would imagine. My kinesiologist I pay to see has helped me no end. She put me on a high dose of vets Bcomplex, D, Selenium and zinc. Over the months I feel things have improved. She said to me "it's not just the cancer that died, it's your whole body that's been to hell, it all needs realigning, it all needs treatment."
My neck was so swollen she suggested I massaged hemp oil, good for inflammation and swelling, it has certainly helped. She spent a lot of time treating my neck and throat, I still can't swallow well or eat much but I see ENT this month, not holding my breath, but I just hope this is about healing. She reckons with this type of cancer and treatment, 2 years!!!!!!
As hard as I sound, it's very much mind over matter, a day atbaxtime and listening to your body. Finding something that gives you a good kick, with the dog I knew she had to go out, so I started off very short walks with somebody with me and just slowly, slowly worked on it. She became my friend at-home when I was there alone, believe me she listened to some right old hysteria at times! She saw a gallons of tears, anger and total quiet!!! I'm no advocating a dig but for me she got me over that hump and did my cats, they were a constant who didn't need to speak or have an opinion! She came in thecshower and slept wherever I dropped off!!!!!
It's so hard, I'm in bed by 9 because I don't funcion well after about 7. So, I would suggest its a very long journey, its a brutal journey and a very dark journey. I just want to be me again although I really don't belive I'll ever be me again but I'll settle for 75%!!!!!!!!!
It's just a question of getting through it the best way you are able to. I am very conscience of my network, they went through enough, it nearly destroyed by sons and my sister, we had lost my dad, brother and mum and 2 close cousins unexpecedly in 26 months, then me. So, I made a conscious decision that I had to get through because not only me but because of them. Another tradegy wasn't an option. It was the strangest mind set that kept me pushing!!!!
This is probably of very little help to you, it is just my perspective and it helps to write. That's another thing, keeping a bullet point journal, writing things down helps perspective, it might him. To look back after a month a see progress is quite a motivator.
Anyway, I wish you all thevvery best and you........be kind to yourself, give yourself a break we need you and can't manage without you!!!!!!! X
Reiterating what Dani has said treatment is hard it’s brutal many if us felt like we were in a tunnel with no escape. I was lucky in that respect but ive helped lots if others turn a negative in to a positive along with our lovely others in here. . 5 years ago this month I got my diagnosis exactly 31 years to the date after my dad got his cancer diagnosis 6 months later he died. But look at my blog try and get him to read our personal ,experiences s I’m living a good a life as before if not better in many respects. It’s made me a kinder person helping others in here just by saying a few words of encouragement in some cases.
what people don’t realise radiotherapy to,our most delicate area of the mouth can and does have debilitating side effects. Our mouths and throats are vital,too,our existence and they go through hell and back. I do hope he can get through this next period.
lhugs Hazel .
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thank you for telling me your story very insightful and a great help x
Thank you xx Cancer's shitty at the 'best' of times but in the throat seems doubly hard
Unlikely. He's a Yorkshire man and rather stubborn!
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007