Hi everyone,
so had 2 days of radiotherapy, I got through it with a sedative and support nurse.
I was told I probably won’t get side effects 1-2 weeks or more, but I’m already feeling tight and stiff in my neck, back of my throat where tonsil was removed is also feeling different.
it’s not pain just feeling uncomfortable and different also I’m feeling sickly in the mornings is this normal after 2 days or just me?
thanks
caroline
Husband still in hospital after vomiting his first NG tube out he was then refitted only for it to end up in lung. Obviously removed and then eventually got fitted. He has undergone his 21 of 30 radiotherapy today. Pain is hopefully being managed but today in severe pain after therapy. He has 9 treatments to go and I feel he would be better in hospital till they are over. However I can't help but feel being pressured to get training in Ng feed for him to come home. Not been said just general feeling. Can anyone tell me how long NG might be in. Thks
Hi therE
i had 6 weeks of radiotherapy with the mask. I had to take a diazepam every time as the mask was awful. I got the nurses to play music whilst the treatment was on and I focused on it.
I hope this helps
take care
He has 9 treatments to go and I feel he would be better in hospital till they are over.
This has to be up to you both. If you can’t cope and your husband is losing weight the hospital will keep him in but they will be keen to get him home as soon as possible. I found I picked up NG tube management fairly quickly. It’s a question of confidence but don’t be pressured. The lack of pain control is problematic. I really needed my background pain to be managed and when I was given long acting morphine twice daily it was a game changer. Some people are given Fentanyl patches. They achieve the same thing.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi mine was in 3 weeks before and 3 weeks after. Mine was a lifesaver for me, my husband took over the feeding and making sure I was hydrated as well as fed. He also checked my p h levels prior to each feed. Personally I wouldn’t have wanted to be in hospital, At hime you’re in control of medications is he in sufficient to keepmthe pain at bay. Mine was taken by rote I had a spreadsheet that we ticked off when medication was administered which also went 8n via ng tube.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks so much. Don't know what part of our journey I have told. But up to 13th treatment all going well. Sent home with Oramorph and paracetamol. Weekend and had to phone hotline sat/sun. Told at last call to attend local A&E where he spent 20 hours in corridor before being sent for his treatment at different location. Steadily not eating much and vomiting still attending for therapy then only through dietician admitted. Thought that was it but then vomited tube up. Had another fitted which was placed in lung. Just feel it's all too much too soon to be talking about training for NG feed for home. Thanks again.
Some people just seem to have a really bad time with feeding. Maybe it's just a real sensitivity to the radiotherapy. It batters the whole body not just the target.
I fed slowly by pump overnight. Some people carried their food around in a rucksack and fed through the day. Might that work?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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