Into Recovery I hope. A Very Dry Mouth

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Stephen: Stage 2 tonsil cancer: HPV 16. Treatment end 20 January.

Hello all,

Well my symptoms peaked in the 3rd February, and since then things have been improving. My main problem now is that I get a very dry mouth at night. It is bone dry when I wake up.

Other than that the wound is less painful everyday, and I'm considering going back to work in April. (I have been off since the end of October). I have to go back soon or I never will, if that makes sense. I'm still processing the fact I had (have) cancer, sometimes it seems like a dream. 

Stephen  

  • Hello Stephen

    I'm so glad you're feeling better! Hang in there, and good luck with return to work. 

    I have Sahara-dry mouth too. I find Xylimelts helpful - you can stick one to your gum at night.  Also sometimes sugar-free gum or Orthana mouth spray though not keen on sweet taste. But mainly just having water handy. 

    All the very best with your recovery. I know just what you mean about bad dream - hopefully it's all over. 

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story

  • Hi. I used xylimelts (Amazon) at night for dry mouth & chew sugar free gum in the day. I have found ACT gum & dry mouth lozenges work for me. You can buy them via iHerb as they ship from the States. I’ve had 5 acupuncture sessions - auricular for saliva production plus body points for insomnia & relaxation. I definitely have much better sleep now & my mouth is much less dry. I no longer need the Xylimelts. All the best for your continued recovery. I’m nearly 11 months post treatment. 

  • Hi Stephen As others have said Xyimels at night are a lifeline. I’m almost 5 years post radiotherapy and still use them. Sadly dry mouth is a long running side effect it does improve in the daytime for many if us I had auricular acupuncture which I swear kick started my saliva glands to a certain extent but nighttime I sipped water for a good few years as well as xyimelt and day time sugar feee gum helps. Re work see if yiu can do a phased return as it’s still early days for you. Well done Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Similar here Stephen - taste is also still shot and flap swollen which has made eating more problematic. 

  • And same here. Radiotherapy finished 12 January. Taste shot to bits, incredibly dry mouth and my flap very hard and swollen. Just playing the waiting game now.