It’s Back

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I am now into my sixth year of treatment, six weeks ago two small lumps were found under my arm. After a meeting of the team it was decided to leave it for six weeks. During that time a scan would be done to determine whether it had grown. Unfortunately surgery was ruled out because of the location.

 I am waiting for the scan as the lumps have grown noticeable,I have another appointment with the oncologist on March 7th.

 I have had two neck dissections due to Squamous Cell Carinoma.

Michael

  • Very sorry to hear that Michael, you have been in the wars & deserve a break. Fingers crossed for you - good luck 

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Oct 2024 nearly 2 years all clear. See my profile for longer story

  • Oh Michael. I’m so sorry to see you back here. I remember Russel Banner had you on immunotherapy. Was that for just the two years? 
    I hope they can find something to keep you well for years. There are others here on even more sophisticated trials. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Michael

    I’m sorry that you are going through such a tough time, you have been through it. Sometimes it just doesn’t seem right.

    I have also had 3 occurrences and had to have 3 big ops starting in 2013 then 2019 and 2022 and know how tough reoccurrences can be. I also felt demoralized for a while but same as you with some help with counselling it did make a huge difference. I now live my life one day at a time and enjoy the moment and don’t take anything for granted.

    Stay positive as I have everything crossed that the doctors’ can come up with a successful treatment plan for you.

    Lyn

    Sophie66

  • Hi Lyn

    Thanks for the feedback.
    This is the first time I have felt so down it’s not like me at all.

     I am now nil by mouth and being fed via a peg.

     I think I am ready for some counselling 

    hope things work out for you.

    Michael

    Stay strong 

  • Hi Dani

    Thanks for the feedback.
    This is the first time I have felt so down it’s not like me at all.

     I am now nil by mouth and being fed via a peg.

     I think I am ready for some counselling 

    hope things work out for you.

    Stay strong 

  • Hi Catrina


    Thanks for the feedback.
    This is the first time I have felt so down it’s not like me at all.

     I am now nil by mouth and being fed via a peg.

     I think I am ready for some counselling 

    hope things work out for you.

    Stay strong 

  • Hi Michael so sorry to hear your news .Everythjng x for the scans and further treatment. There are quite a few new trials going on at the minute. It may be worth asking g p for a mild course of anti depressants  there’s quite a few who have had them on the forum. Macmillan offer 5 or 6 frees counselling sessions in conjunction with bupa.will look for link and pop it in for you. 
    Hugs Hazel x

    www.macmillan.org.uk/.../bupa-counselling-and-emotional-well-being-support

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Hazel 


    Thanks for the feedback.

    This is the first time I have felt so down it’s not like me at all.

    Michael

    Stay strong 

  • HI Michael

    So sorry to hear your news.  It seems terribly unfair.  Reading the comments I see that you really are suffering mentally from this latest episode,  I can't offer any advice, but totally understand what you are going through.  The first 2 times through I coped well, but last October I went to absolute pieces although in the end it was a false alarm.  You are not alone in those feelings.  I hope they have some positive news regarding treatment when you see your oncologist.

    Peter
    See my profile for more details of my convoluted journey
  • Hi Michael You can get counselling through the hospital but it can take a long time which I found out. I would suggests just going on line and finding someone local and paying for it as I did , There rates vary and I think mine started off at £60 and now pay £40 per hour and we sometimes go well over the hour. You can also go on line and have a session. I would highly recommend it asap. My partner of over 30 years told me she wanted to leave which isn't ideal. So I was in a dark place and life didnt seem worth living. Got over all that and recently had a salvage neck dissection. So its all go . I really hope they sort you out. All the Best Regards Minmax