Hi,Bucephalus here after what must be about a year.Even though I read every e/Mail I receive from the Macmillan Community even if I do not give an opinion,mainly because I only remember one other member having similar treatment to me plus they had Chemo,not just 30 RT sessions.Also there are many answers I would echo anyway.Some members have had/ are having horrendous experiences which make me a very boy of 73.Now 18 months post RT treatment,cancer free at the moment with no side effects.All I had was to wear I neck bandage plus cream for roughly 3-6 weeks like a lot if you.I still have to use Factor 50+ every time.e I leave the house.Thats not to say there have been no scares on the way.At times the team that looks after me + my GP's thought I had Oesophagus, Stomach,Lung and Bowel cancer but all proved to be negative - PHEW.Before treatment,my only FAILURE was the MRI scan,I lasted less than 1 minute mainly due to Clostriphobia and at that time not having the eyeholes cut out.Luckily for me my Consultant accepted that my 2 CT scans provided enough info for treatment to start,again PHEW.It was after that at Beesuits suggestion that I had the eyelets cut out of the mask- made all the difference under treatment being able to see the machine rotating and the picture on the ceiling .Also they played my CD's,which I later donated to the unit.Would I have managed the MRI then-?.I cannot praise the Macmillan nurses,the community and my medical team highly enough.I have been VERY,VERY lucky compared to most of you and I cannot imagine the long hard fight you are having.I cannot heap enough praise on you all.The Community gave invaluable help to me.Easy for me to say,BUT never give up,talk to your team ANYTIME and make a list of questions .They are there for you and nothing is a bother-So use them rather than FRET.Most of all keep away from Dr.Google and do not listen to rumours.There is enough help from the Community alone,from experienced people who love to help when they can.
My best regards and wishes to you all.
Raymond.
Hi Raymond. How lovely to hear from you and to read how well you’re doing. I remember your posts so well. You have an unforgettable forum moniker too.
Your’s is a great update and so encouraging for those just starting out. Keep well xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
