T4 N2 M0 p16 base of mouth, tongue and lymph gland
After 3 rounds of induction chemo, Oct, Nov, Dec then 6 weeks of 30 radiotherapy alongside 6 additional chemotherapy, my husband has completed his treatment today. He is feeling weak, has horrendous mouth sores and a swollen throat and has been on a feeding peg since the end of week 3. Absolutely awful journey, however ; we are feeling positive and thankful for where we are today. Back in October we really couldn’t think as far ahead as this, just taking each day at a time., celebrating the little wins of each day and crying over the absolute dread of what was ahead. Now it’s time to power down, rest up and allow his strength to build and body to repair. He has won this battle, next goal is to win the war but for now that can wait for another day.
After 35 years, I have never been as proud of him as I am right now, he’s my hero
For those of you starting out on this journey, this forum offers kindness and real life experience, which I have read every day and gained some good tips and reassurance.
From our journey, my advice would be -to hang in there, you will cope, you have to. If like me you are the care giver, go to all the meetings, understand the the importance of the med schedules, don’t be afraid to speak out, above all be kind and gentle, this includes to yourself and accept support when it’s offered. Listen to your specialist team, do everything that they recommend, they really do know best. I can’t praise the specialist team enough, they will support you and the family every step of the way.
We are not out of the woods yet but enjoying the glory of getting this far- from the sofa
if any of you are on this journey and have any questions feel free to ask
best wishes
jackie
Hello Jackie. What a loving and uplifting post. Yes it's hard journey but it's doable and the one serious lesson I learned apart from doing what my team tells me is to be kind to myself. This is my time as the patient and I really have to concentrate on myself, not trying to spare others feelings or worry about what they think.
It sounds like you both have done a wonderful job. Now take time to heal. Don't try to hurry and listen to your body. One day at a time. becomes one week at a time then one month at a time and suddenly you are at 6 months and feeling much more like your old self.
Well done both of you xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
if any of you are on this journey and have any questions feel free to ask
If you can it would be wonderful if you could put a potted history in your profile. It's one of the first places a lot of new members look....to sort of get a background feel
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
