Symptoms Status

Brilliant depiction. Sorry though

Feel your pain <literally>. Done ten days and mouth is a complete mess. 

Hi Gene yep day 10 was my turning point  it was thrn  their own and I realise that I would need in pain medication and eventually the feeding tube feeding start using it if you’ve a peg put  all your hydration nutrition and medication through it

hazel 

Still awaiting plan for feeding. They appear happy with diet at the moment 

GeneS said:

They appear happy with diet at the moment

Are you though? Weekend coming up. Maybe give them a nudge to get food ordered for your peg? I had my feed dripped slowly over night with a pump. Left me so much freer during the day and helped hold the nausea back. 

Hi Steve It really is about getting things in order to make the trip as best as possible imho

Hi Steve

Soz to hear you having a bad time but it early days for you yet it will.get better just takes time 

Pain needs to be managed or just gets worse causing anxiety and other issues concerning stress i know ive been in your shoes and as i said gets worse before it gets better.

Just take every day as it comes u will get there i know its frustrating and theres so mich going on at the moment just trust in yourself its amazing what our bodies can do take it from me i was in a dark situation myself and am still here so it does work.

Good Luck

Chris 

Thanks, Chris. I have cocodimol now, which seems to work. I'm grateful I can still get food down towards the end of week 3

Don’t forget the laxido or movicol as co codomol causes constipation.

hazel 

Hi Steve

Im glad you getting some pain relief with the cocodamol i was on them too helped me and took the edge off.

Great your still eating at week three it helps and keeps things a bit more normal do you have a peg will need it in time.

Good luck keep plugging away ull get there 

Chris