Hello dear people,
i was thinking of you while we were in Croatia and Australia.
So, thats the reason I wasn’t with you guys
I had my first PET scan last week, and oncologist was happy and positive as all is good. Still have ulcer at the place was cancer, and he said all good, but have to monitor after he take camera in..
So, i am seeing my surgeon on the 13th, another PET scan mid Jan.
I am feeling great, eating almost everything, tasting all, still don’t like chilli or papery but, I don’t mind. Tried sip of alcohol, yuk hehehe
Having acupuncture amazing dr., so dry mouth symptom is getting there, and no sips of water by night yuppie
I think, thats it?! Oh yes, I can’t really put kg on, but oncologist said with my cancer (even by researching trying understand why not), but it doesn’t know why doesn’t work like with others. Anyway, i am getting to my normality- very energetic and doing all stuff etc. Still waiting for dental appointment, but dr said at least 6 months.
Hope you are all on the good path…love to all ️
going to read…
your Marta x
Well done Marta......
Oh yes, I can’t really put kg on, but oncologist said with my cancer (even by researching trying understand why not), but it doesn’t know why doesn’t work like with others.
Same here. I could eat like a horse for over two years .....then I couldn't....which was a bit of a shock!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks Dani! Yes, i am eating so much How was your weight after 2 years? You got some kg?
not sure why have to do another PET scan, always makes me nervous, but probably thats the way?!
i could feel uncomfortably from ulcer is less and less, so it should be better.
Hi Marta ditto I could eat what I wanted for first 15 months then bang the kilos started to be out in so bye bye cream cakes.
don’t stress about pet ct scsn look at ur as an insurance policy.
Hazel
os spicy peppery still a no no for me
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
How was your weight after 2 years? You got some kg?
not sure why have to do another PET scan, always makes me nervous, but probably thats the way?!
Hi Marta I didn’t lose much weight with treatment anyway
Your doctors are doing another scan to check the small ulcer
I had one. Some trusts re scan after an interval others biopsy straight away which is what happened to me . My biopsy showed no cancer
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Glad to hear from you Marta and sounds like you're doing well! I had my PET CT scan yesterday (it was odd being told I'd be radioactive for 8 hours!!). I have to wait 2 weeks to see my oncologist, so trying not to worry but it's hard to switch my mind off from it completely. I will continue to think positive thoughts!!
I lost about 12kg (but was probably a few kilos over weight!) so I am now in a size 8 and fitting into some clothes I haven't worn since before being pregnant I can eat anything, but not as keen on chocolate and prefer coffee instead of tea, which is quite strange! I don't like the taste of wine any more, but I can drink sparkling wine/ Champagne and I like Baileys! I haven't bothered trying beer or spirits as I didn't like them much before anyway.
Have a lovely Christmas xx Helen
Hi Helen. Fingers crossed for your results. I’m sure they will be fine though it doesn’t make the waiting any easier. Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007