Bit fed up

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Hi everyone. Sorry to moan but I am a bit down. First the good news, saw my consultant last week and all good. However, I have had 2 viruses in the last 2 months (one of them covid) and they have really taken it out of me.  I am finding that when I start to get back to my walking etc. I just get ill again. Last weekend, out of nowhere, just as I was starting to feel better after covid, my lips swelled to double their size and a redness started to spread down my neck.  I was terrified. I left if for a day but felt gradually worse so went to a snd e, where I was seen v promptly and received antibiotics.  The infection came from a huge sore on my lip. Which I couldn’t see at first.  It came out of nowhere snd I suppose what I am trying to say is that all these things have rather taken away my confidence. I feel I won’t get better snd all these side effects snd things happening to me are out of my control.  Sorry to moan but I feel a little helpless snd frightened of the future and how I am going to manage to live my life alongside all that has happened to me this last year. 
many advice welcome

lizzie123

  • Hi Lizzie. Remember that none of this is anything to do with your cancer. That bit is done and dusted. It’s horrid to have to plough through covid if you’re one of those who react badly. It’s just bad luck. 
    Recovery is often two steps forward and one back, sometimes even more than one. I just put my head down and tried harder. I do know how soul destroying it feels though. 
    Have another read of Peter Harvey’s article. Some of it might help 

    www.workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Lizzie this is just the place to have a safe moaning session.  We all get a bit down occasionally.  I echo Dani's comments and the latest round of Covid can really take it out of you for some time despite vaccinations.  I was out for a few days and it was about 6 weeks before I could walk up a hill without stopping.  You are not alone with the cold sore getting infected as my wife had that in September.  Like you a course of antibiotics sorted it.  I suppose what I am saying is that we all naturally worry post treatment that something is going wrong and that a simple, non connected, issue can trigger those fears.  I have a few of those!  We do get better at manging these emotions and as they say, "time is the great healer!"  Hold onto the good bit from the consultant and try to concentrate of enjoying life which the vast majority of us can do post treatment.

    Peter
    See my profile for more details of my convoluted journey
  • Its only natural to feel fed up with everything that is going on. Its a bit like the twilight zone . Good Luck 

  • HimLizzie sorry am late to the post we’re away at the moment. It’s ok to feel down and fed up but look how far you’ve come since though dark days of diagnosis. Just take things easy for a while your  body will tell you when it’s time to get out and about again my oncologist b said he was going to cure me but also said he was going  to take a year out of my life he did both. You’ll manage yiur life we all do minor adjustments might need to be made, but you will get there. 
    Rant away that’s what the forums here for as well as advise. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/