Week 9

Hi Pauline. Correction .. you HAD NPC

if your kidneys have taken a hit it will take time. So just hang on in there 

For me the mucous just disappeared practically over night. I did all the things you’re supposed to, steam my head drink lots but it had a mind if it’s own. I was very nauseous too but warming my Fortisips and soft food helped. 
My appetite too was poor and truthfully it was six months before I was interested in food. Till then it was fuel and I just got it down by the clock. 
My treatment finished at the end of a January and I slept with fleecy pyjamas, a fleece and a hat till the Easter. 

Are you managing to get out and about for a few minutes each day? I found that helped 

Hope you feel better soon

I am out and about. It doesn't sound as though there's  anything unusual here!  Just keep going! Thank you.  X

HimPauline. Yiure about in track everythIng Dani has said  said is right the majority of us go through. I too had cisplatin and my body thermostat took around a year to sort out. We had the battle of the thermostat at hime with the heating .Now at 4 years it’s the battle of the thermostat but that’s going to be the increased prices !!! Food is fuel and eat to live not live to eat was my mantra , I got very little pleasure from food it was calories calories calories. I aimed for 2000-2500: calories every day ensures to start with i had  6 every day. Exercise helps to start with itbwas 100 yards on our street going a little further every day. Look at our blogs might help. 
Hazel x

Alfienangel said:

I am out and about. It doesn't sound as though there's  anything unusual here!  Just keep going!

Yep....just put your head down and day by day time will disappear and you will be better. You've done the hard work...just a little more to do

I have zero interest in food, the very thought of food makes me nauseous.  So, what can I have given it all  RIG can I try?  I have a meeting with the dietician in 3 weeks but  need to be doing something now..

Try In no particular order.......Custard, ice cream, soups with extra butter and cream in , tinned macaroni cheese, home made pasta but cook it well, melted cheese, toasted tea cakes with lots of butter, scrambled egg with Phily added which makes it softer, poached eggs on their own or on smashed avocado, banana, dunking biscuits in a warm drink, toast is easier to eat than bread..again with lots of butter, tinned peaches 

Hi Pauline.very few of us had any interest in food but uts a case of eat to live. I started by swallowing ensure ir fortispis drinks from week 3 I had 6 which have me 1800 calories that left me free to start trying to eat. It’s nit about healthy eating tomstart with utd calories by any means possible. Toast like Daninsays was my big surprise far far easier for me than bread.  Bread clogs toast well buttered with a poached egg. All the things Dani has listed. 
try this link as well.

By week 6 I was eating 50% food and kept reducing the high calorie drinks , tomstart with I used to look at calories the higher the better .it’s a whole new way of shopping it took me 15 months to start put ting weight  in but I didn’t loose any  now I’m back to full healthy eating l A fruit tea cake toasted with melted cheese cut into quarters and wash down with Luke warm herbal tea gave me in excess if 500 calories might have taken 30 min to eat but persevere  forget about enjoyment it will come back  

https://www.yumpu.com/en/document/view/66263025/cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022

Hazel