D-Day Approaching....

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Thought I would start a thread on here in the hope it helps others....

So I go in for my half gloss and double diss and all the other related stuff on 6th Oct. Did my pre-op today and got a consultation, PCR and another blood test before the big day. 07:30am start on the day and consultant suggested a 15hr job (eek!).

Letter stats a 2-3 week stay but he said be prepared for 4 so hopefully managing my expectations. 

From formal diagnosis on 2/8 to op (planned) on 6/10 is not a bad effort, thank you NHS.

  • From formal diagnosis on 2/8 to op (planned) on 6/10 is not a bad effort, thank you NHS.

    It’s excellent. 

    i got a diagnosis in September and was on the RT treatment table 12 weeks later. But I’m still here. 
    I’ll catch up before the 10th to wish you luck 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Gene. You’ve got this just take everything in baby steps. Don’t think too far in advance. You’re in good hands our NHS at its best. I was 63 days from diagnosis to treatment starting now 4 years post treatment   Remember pack a long cable for  your phone tablet kindle as plugs are usually out if the way. Maybe a little whiteboard to communicate with over first few days. 
    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi GeneS the NHS are not bad at dealing with things when they really need to.  Hopefully the operation will not be as extreme as 15 hours and a possible 4 week stay.  Often, they need to tell you the worst scenario and deliver something much better.  Fingers crossed!

    When I was going for my tongue op I took my phone and an android app called speech assistant.  This allows you to pre build sentences, so if you are more technology orientated that may be better than a white board, but it is good advice to have something to hand.

    Peter
    See my profile for more details of my convoluted journey
  • Yes - I think the consultant is managing expectations all along which I do not blame him for.

  • So I go in for my half gloss and double diss and all the other related stuff on 6th Oct

    Good luck Gene. I’ll be rooting for you xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Thanks Dani! Much appreciated - 07:30am tomorrow we start. 

  • Good luck for tomorrow, will be thinking of you.

    Regards Ray.

  • Good luck tomorrow is the first step to kicking cancers butt. Pop back on when you can. 
    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.