16 week scan update

  • 6 replies
  • 50 subscribers
  • 620 views

Morning all , thought I would let you know that following my 16 week (ish) PET/CT scan , my cancer has responded well to treatment and has gone . I’m currently doing great post recovery , I’m eating well again and even enjoying a beer a couple of times a week !. Started a phased return to work a month ago which has been great , 3 days a week with a gradual increase in hours with constant monitoring by our Occupational Health providers.

Tiredness is getting better gradually with the only two things which are slightly bothering me are the dreaded dry mouth and I sometimes get a sudden ‘jolt’ of pins and needles down my back into my arms and legs when I’ve been sat a while and decide to move??? Probably not treatment related I know lol .

I know I’ve said it before but the advice and pointers I received before treatment began from you good folk on here was invaluable.

Early days still I know but it’s another rung on the ladder out of the crap we found ourselves falling in to .

regards all

Gary

  • Hi Gary, what a great post to read, so pleased your scan came back with the result it has, you seem to be doing really well. Posts like this are such a help, to those who are just starting out, or having their treatment. All the best to you.

    Regards Ray.

  • Hi Gary. Great news gives hope to those in treatment and tigers to come. Yes dry mouth does improve I’m 4 years almost and now can go a few hours without constantly drinking I still chew gum but not as often as the early days. I did find auricular acupuncture helped kick start my saliva. The pins snd needles could be treatment related neural periphery. They do go eventually but mention at your  next review. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Well done Gary. You sound well on top of things. 

    I sometimes get a sudden ‘jolt’ of pins and needles down my back into my arms and legs when I’ve been sat a while and decide to move??? Probably not treatment related I know lol .

    Have a think if this pain is precipitated by your bending your neck forward. 
    Google Lhermitte's. It sounds very much like it. I had that and it’s gradually faded away to a negligible fizz feeling 

    It is due to the RT. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • For me, just 3 weeks into treatment your words have given me hope.

    Stay well

    Live long and prosper!!    

  • What great news Gary. More power to you and the medical science. Here's to never looking back Beers 

  • Great post and thanks for taking time to write it, given me (for example) hope for better than painted recovery - I know it is all relative and personal but thank you Gary