Week 2 recovery

Hi All - just  a quick update to summarise my last 2 weeks of treatment and I'm currently half way through week 2 recovery. In short:

- Painful by end of wk5 and started oramorph during weekend before wk6

- Mucous became annoying in wk 6 and was a real nightmare by wk1 recovery, still an issue and causes gagging (yuck).

- Using the nebuliser is marginally helpful

- Spitting a LOT (getting through tissues at a rapid rate)!

- Using the RIG for Fortisips since the mucous took over as it makes me gag and I'm simply not going to eat something then immediately throw up the calories!

- Still swallowing and I can drink water and take all meds and thin soup orally

- Daytime now just on paracetamol (oramorph only used at night)

- Skin on my neck healed completely by end of wk1 recovery - highly recommend the Propolis cream, it is magic. I just look like I have a tan.

- Mouth has been sore, I've had small blisters that come & go quickly; currently feel some at the back of my throat 'drying up' which makes me cough (vile!)

- The RT has brought my freckles out on face and back of neck - how strange!

- Zero appetite so food is fuel

- A few meltdowns, but generally when everything started coming at once and I didn't know which side effect to dress first, extremely frustrating  and worthy of the odd tantrum!

It feels like 2 steps forward and 1 step back at the moment, but certainly small improvements each day. I'm glad I have the rig tube (which I barely notice now - never thought I'd say this 3 weeks ago!) - But can't wait for the mucous to lessen so I can entertain eating orally again without gagging!

Onwards...

Helen x