HPV head and neck cancer recurrence vaccine trial update….

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Just a quick note to say that the anti HPV cancer recurrence vaccine trial (HARE 40) I was due to start a couple of weeks ago has been postponed. Having given very much an armful of blood for the baseline and undergoing various tests to gauge my suitability I then contracted Covid, having managed to avoid it up till then. So it’s back to square 1. It’ll probably start now in late September. I’ll keep you updated. 

  • I’m hanging on your every word, Mark. 
    seriously I hope you’re soon fighting fit 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I asked about that at my last appointment.  They had not heard of it but were going to research what was happening at UHS - for H&N Salisbury and UHS are partners.  Hopefully hear at my next appointment what, if any, options I may have.

    Peter
    See my profile for more details of my convoluted journey
  • Ha ha! Yes, I realise this is probably aimed at something of a niche audience but if it works it would be a major advance in post HNC care. The nurse told me they’re struggling to get people signed up because of the required level of commitment - at least 16 hospital visits over 3 months, 8 of which are full days with the possibility of being kept in overnight if you react badly. And no reimbursement apart from a ‘contribution’ towards travel. As far as I know only Southampton are involved. 

  • That’s the trial a friend of mine drove down from Whitby for. They spent a fortune on accommodation. Fingers x for September. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/