Just a quick note to say that the anti HPV cancer recurrence vaccine trial (HARE 40) I was due to start a couple of weeks ago has been postponed. Having given very much an armful of blood for the baseline and undergoing various tests to gauge my suitability I then contracted Covid, having managed to avoid it up till then. So it’s back to square 1. It’ll probably start now in late September. I’ll keep you updated.
I’m hanging on your every word, Mark.
seriously I hope you’re soon fighting fit
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I asked about that at my last appointment. They had not heard of it but were going to research what was happening at UHS - for H&N Salisbury and UHS are partners. Hopefully hear at my next appointment what, if any, options I may have.
Ha ha! Yes, I realise this is probably aimed at something of a niche audience but if it works it would be a major advance in post HNC care. The nurse told me they’re struggling to get people signed up because of the required level of commitment - at least 16 hospital visits over 3 months, 8 of which are full days with the possibility of being kept in overnight if you react badly. And no reimbursement apart from a ‘contribution’ towards travel. As far as I know only Southampton are involved.
That’s the trial a friend of mine drove down from Whitby for. They spent a fortune on accommodation. Fingers x for September.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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