Angry and thinking maybe just give up on hospitals

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This is the email I sent to Pals this evening:

Good evening 
I had a second MRI appointment after a failed one where I had a panic attack.
The appointment was today at5.50pm at Kent and canterbury hospital , I had been assured that although they didn't have an open MRI scanner which my consultant had requested they had a wider MRi and I wouldn't need a head cage.
When I arrived at the MRI unit I was greeted by the same man from my previous scan, he said to me "I don't know why your here we don't have an open MRI scanner!" I explained I wanted to try and told him I didn't need to where a head cage, he said " yes you will" I agreed to try. The man said "well I'm not prepared to waste contrast solution if your not going to stay inside. I got on the bed let them put the cage on and after having earphones and plugs went into the machine , there was no music no communication from anyone and after 3 and a half minutes I pressed the buzzer nothing happened no voice from anyway I started screaming and only then did I hear some one say coming. I felt like I was treated like dirt and that I was a nuisance . They told me then I only had to go back in for another 3 .5 minutes which was confusing because they initially said 30-40 minutes. I didnt trust them to get me out again if I pressed  the buzzer . I don't know the man's name but he was rude and confrontational .
I said to my husband maybe I should just give up on drs and hospitals , get on with my life however short or long it is .
  • Hi. Sorry to hear you failed your second MRI. There seems to be quite a bit of misinformation and lack of communication here. Whoever referred you for your second MRI must have known there wasn’t an open machine. They are quite different from a bog standard one as you actually sit up in it. The newer scanners are wider and open at either end. The radiographer was understandably miffed that you were given the wrong info but nevertheless it’s no excuse to be rude. More blame lies with your referring consultant. I do hope you get some justice over this and that there is enough info in your CT to proceed. 

    One thought I’ve had is that parents are allowed into scanning rooms with their children as there is no dangerous radiation. Could you perhaps ask if somebody can accompany you? 
    Don’t  give up. You need to get through this. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I'm so sorry you have had this problem with the MRI.  The radiographer should not have been rude to you, that is unacceptable.  Myself and my family have been supporting my son, who had cheek and jaw cancer.  He gets very claustrophic and when he went for the MRI scan he had a panic attack.  However, the hospital radiographer advised him to speak to his GP to get diazapan.  He was given another appointment for the scan and had diazapan prior to going to the hospital.  He managed fine with it.  He went on to have an operation to remove the tumour and rebuild his jaw, then 2 sessions of chemo and 33 sessions of radiotherapy,  He took diazapan when he was fitted with the mask and for the first session of radiotherapy, after that he managed the radiotherapy without any problems.  He is well on the way to full recovery (fingers crossed), in fact him and his wife and children have just gone to the Lake District for a short holiday.  

    Don't give up, speak to your GP as well as your consultant to find a solution to your problem.  

    Please keep us updated.

    Regards

    Macfarlane 

  • Great ti hear your sons gone  on family holiday. Onwards n upwards. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Oh dear Dani has said it all. Ask if someone can hold your hand or maybe sit at the feet end  and talk to you maybe stroke your leg  something  to comfort you. Please don’t give up if it’s head and neck cancer they are eminently curable   Hope you get sorted. Can you try diazepam? To calm you ask for an early appointment might be less stressful than waiting ? 
    Hazelnx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hope your son and family have a lovely holiday 

  • Thanks everyone I'm just a little low and feeling sad and tired , I will bounce back I just need a few days to process what happened and to move forward. 

    Thankyou all for your support