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I've only gone and bagged an invite on Nana Akau's show 'Difficult Conversations' on GB News this saturday at 5PM to talk about my journey with cancer. Dan Wotton's production team is also interested GrinOk hand

Lee

T4 N2 M0 left oropharayngeal SCC(grade 3, p16 positive)

  • Fair play to you, how does one watch GB News? Hopefully can access online as I've not been TV connected for a couple of years now.

    I've done an interview on regional BBC radio and a few social media things for Macmillan, very rewarding and great to get the message out, enjoy it!

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • They have an app and they are also on digital radio. It's going to be a good experience Raised hands

  • Thanks for the heads up. I’ll be watching. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Just watched it on catch up. Nice to put a face to the name, Lee. 
    What a story about your GP access . Beggars belief. 
    Im amazed you have so few remaining  side effects at five weeks! And you did the whole interview without a drink. Well done. I hope your recovery continues in similar vein. 
    Fingers crossed for your PET/CT. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • I just watched it.  Well done you.  Amazing for only 5 weeks post rt. 

    lizzie

  • Nice one Lee, came across very well, this is a link for anyone who wants to have a look.

    www.youtube.com/watch

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi Lee just caught up on catch up. You’re looking remarkably well for 5 weeks. Don’t stress about the scan mine was 18 weeks after treatment the longer they leave it the less chance of hot spots. Current thinking is 12  weeks is too early. jJust a heads up on that one.

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • My mouth is dry but its better than spitting up saliva and mucas like I was every 5 minutes 3 weeks ago. Im still not eating much and still in pain which is controlled by pain killers.

  • If anyone hasn't got catchup you can also watch it YouTube https://youtu.be/pAuNta27u8w

  • I see that the reporter asked you to keep in touch with how you’re doing and invited you back. That’s a great opportunity to bang home that this disease is largely preventable with vaccination. 
    The HPV vaccination has been around for some years for girls and is now available for boys too. The incidence of cervical cancer in women in their twenties, often the worst and most aggressive kind,  has plummeted 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge