Mask done ✔︎

Same here. I got to 68 years of age before the doctors got their hands on me. ( apart from the birth of one child) and it was downhill all the way. 
I had eyeholes cut in my mask and watched the proceedings with fascination for five of those six weeks. 
I had too much pain to swallow by mid week three so had an NG tube but I can say that it never really got much worse and I managed with pain relief by taking it all by the clock. 
The NG saved my life as I couldn’t eat anything. I did swallow exercises to keep my throat functioning and made a largely uneventful recovery.
Three years later apart from a reduction in saliva and altered taste I’m largely normal and can eat mostly anything. 
Hope your treatment isn’t too bad. Remember it’s a very curable cancer. 

PS. Sorry your post disappeared for a while. I accidentally flagged it. 

Hi Marta dIto  apart from childbirth I had never been in hospital it was a baptism of fire for me as well 35 radiotherapy and 2 chemo. Remember we don’t all get the same side effects they have to tell us about all of them ,but yiu won’t get everyine. Just take everything one day at a time and keep your team informed 

my blog below lists my experiences 

Hazel x

Hi Marta you are approaching the journey in the right way…good humour when things seem dark. I always feel at least we have been given a fighting chance…some others aren’t so lucky xx

Thanks Dani, as always so positive… i know its very scary NT but at the same time, its good we are still having a choice to feed ourselves  

Your chemo was ok? 
i am bit anxious about it  Not sure what to think of it  

its good and talk to people who passed same path…

i am happy how our cancer is curable and make me extremely safe in that sense, and i am thinking we ate blessed again  

Thanks  

Dear Hazel, 

you are so wright saying Day by day!!! Yep don’t and can’t think to much about side effects, but good to know how people react… 

I believe i have great time in Royal Marsden Hospital, my oncologist seems like really knowledgeable dr (i was surprised by his info ), and kind… so, i know i am in the good hands

i love to read your comments

love to you x  

Hi Anghog,

you are so wright…

we are lucky, and i must admit i am thanking to Mr. Above how lucky we are… just positive, nothing else  

having 4 years old daughter making easier… hehehe with grumpy teen hahaha

x

I had CT scan done today with my mask.

was good  wasn’t so bad I thought could be… i talked about radiotherapy machine, and can’t remember which one was it, but defo something like SF   probably, this days all looks like it… 

is anyone having treatment in Royal Marsden Hospital, maybe?

Marta said:

Your chemo was ok? 
i am bit anxious about it

I avoided chemo. No cancer in my lymph nodes. A blessing

Oh, thats really blessing  

if my lymph node wasn’t swollen I wouldn’t know i have cancer - even for some time they couldn’t find it from where… 

i am reading about this cisplatin and getting very anxious  

x

Don’t. The team will look after you. If you react badly they can either change the drug or abandon further doses. It’s the RT that does the job. There are quite a few people here who didn’t have the full chemo course.