Ulcers

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Hello wonderful people , ulcers are starting to come Sob any recommendations for a mouthwash please ? I have oralieve & biotene xx

  • Caphosol and Gelclair. Both standard for mucositis and do provide some protection. 
    Difflam is good  fifteen minutes before trying to eat as it deadens the pain a little. 
    How are you feeling, Aly 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani just got back from my first appointment with the Dr , she’s given me difflam & antacid & Oxetacaine , my tongue & mouth has got so sore overnight , couldn’t believe it , I knew it was coming but overnight ? I’m managing at the moment thanks , it’s just my tongue is so sore xx

    1. Aly14
  • Just keep plugging on. It’s a real s h India tango but doable a day at a time. Just concentrate on yourself. Xx hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Mouthwash I used lukewarm water salt and baking powder. Plus gelclair for ulcers ask tomorrow for that. The  antacid and oxycetcsine 30 mins before you try to eat. That numb the throat and mouth ti be honest it didn’t really do it for me. Gelclair did help . 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Yes I found the Oxetecaine awful! Coward  that I am i didn’t bother and just used my tube. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Yes day by day , I’ve actually been in pain since last June , it went after my first treatment , but these little buggers are something else !! Not so much pain but soreness at the moment , thank Dani xx

    1. Aly14
  • I thought it was a mouth wash to be honest but you take it , not sure how it’s going to numb my mouth , my throat seems ok ish xx

    1. Aly14
  • I’ve just asked for gelclair but she said try difflam first , I didn’t get that I got another one but they said it’s the same , Benzy something xx

    1. Aly14
  • Hi Aly benzydamine it’s generic name I’ve only used it for sore throat not ulcers. All yiu can do is try it then ask for gelclair .It annoys me then the hospital trusts work on money  £70 for 21 sachets of gelclair ,when treatment costs thousands.Rant over. 
    Haze x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • I will see how I go , she did say get back to her & she will give me some xx

    1. Aly14