4 weeks post radiotherapy and fed up of being in pain

I don’t have any advice only to say that 3 weeks on and I’m in the same uncomfortable boat. Only thing Is, I’m constantly drooling too so can hardly sleep! Hope we both get some reprieve soon  xx 

When I was at that point my GP prescribed me MST, a slow release morphine tablet taken twice each day. Although the pain was never totally eliminated, especially when trying to eat, it helped me enormously and made things much more bearable. Hang on in there (although I know you’ve no choice) as things do gradually get better. 

Hi Clare 

sorry to hear your the same. Youd think this day and age there would be something they could do?? It’s debilitating isnt it? Everyone keeps saying wow you look so well, makes me feel guilty as im not back to work yet. 
yes I’ve emailed Macmillan team, ill let you kniw if i get any answers xxx

Thanks Mark, ii did try, only for 1 day, the mst but i was like a zombie. Unless i try that and stop something else but together with everything im on I couldn’t function. Lets hope it soon improves 

thank you x

It’s a real problem and you just have to ride it. Try just taking liquid or smoothie bland food for a week. Give your mouth a rest
Another thing. I know some centres are trialling photobiomodulation ( low level laser) for mucositis with enormous success. It’s a shot in the dark. Ask your CNS? 

(Sorry. There’s me trying to helpful and not realising that Zomorph is a form of MST. Hope you start feeling better very soon.) 

Hi Elaine. What are you trying to eat and drink ? Msybe ti give your mouth a break reign it back to very bland thjngs. Radiation ulcers do take time my tongue one was over 3 months before it healed totally. I learned to live with it I thought if something wouldn’t be eaten by a baby /toddler than I wouldn’t eat it. You will turn a corner itis early days for you. Although you might not think it. 
Slerp does become your friend remember you’re also fighting the radiation fatigue. 
Hazel xc

maybe give this a read. 
www.workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

Thanks mark, very helpful 

x

Thanks Dani 

yes ive heard of that x

Thanks Hazel

drinking water although not liking, tea and hot chocolate. The fortisips i also drink but sting. I have weetabix slop, porridge thinned down, fish pie, poached egg on well buttered toast that kind of thing. 
The tiredness im assuming is the painkillers as ive never really had the fatigue everyone talks of, unless im having it now? Hard to lnow but my eyed look drugged up! 
thanks x