Hello, it’s now 5 weeks after my chemo/radiotherapy first few weeks were horrendous with saliva and mucus which I no is a common side effect and has got a lot better with time . I went for my first follow up appointment last week with Doctor and Diet / speech specialists said I was doing well at this stage but now need to learn to swallow again . I currently have my 2nd NG feed tube ( 1st one got blocked ) and am hoping to swallow on my own to obviously get better. However Doctor did look in my mouth and said I have some ulcers in throat and mouth areas , apparently another side effect . I have a bit of a niggling cough for few weeks which does bring up mucus all time and is making throat bit sore , have had antibiotics (possible chest infection?) but doesn’t seem to doing much also got mouthwash . Has any one else had any of these problems ? Is still early days , but I just want to get rid of this tube and fend on my own,, Any advice would be very grateful . Thanks Ozzer
Hi Ozzer. Well done on completing treatment ulcers yes they are a bane of many if us. Even now 4 years I get ulcers due to new foods sometime. But yours are still from radiotherapy mine took at least 3 months to clear , I was prescribed gelclair which does help. As for n g tube I took decision to start swallowing ensures I had 6 a day that gave me 1800 calories which left me free to top up with bits if food. Have a conversation with your dietician mine said it was fine for me ti take n g tube out which I did at week 3. That forced me to swallow of course I like I said asked first at dietician review maybe speak to them? The radiation U.K. was so go I was still on pain killers as well. Plus a medication prescribed to numb the mouth oxcycetscaine suspension
start very soft foods, I use bioxtra as a mouthwash it’s very gentle
will post a link ti help with food ideas. plus my blog might help below
good luck Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Ozzer. Yes those ulcers will hang around. I gargled with Difflam which helped a lot. My oncologist told me that if I could bear corsodyl that would help speed up healing. I managed every night and I must say the ulcers didn’t hang around for long. But do touch base with your team before trying something new. Have you got swallow exercises to do?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Beesuit , thanks for getting in touch , am trying a few exercises on swallowing when my mouth not so sore , shame about these ulcers as feel if these weren’t about the swallowing would be a bit more barable? Have another follow up appointment in few weeks so am sure will point me in right direction. Thank you Ozzer
Hi Elaine. Corsodyl is Chlorhexidine. It’s an antiseptic. Kills all the horrid bacteria in your mouth. It’s very similar to Difflam and I think it’s just down to clinical preference. There are clinical trials to show that there’s not much difference in their efficacy
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
just read this post, dod the corsodyl sting?? Did you dilute it?? Is cosodyl and difflam the same?? ThanksElaine
Yes it did sting but only momentarily. I used it undiluted last thing before bedtime.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007