Hi all,
Been silent for a while as life has taken over and been really busy.
2nd April marked a year since I rang the bell. For the most part life is normal again. I do get tired, but that is partly the RA and partly wanting to live life again. I am getting used to saying no and pacing myself though.
3rd April was our 12th wedding anniversary, this year we managed to go out for a meal, which was lovely especially as last year it was the day I stopped being able to swallow!
Eating is mostly ok now, it's more down to some flavours and textures that I just don't enjoy anymore. My mouth still gets a bit dry, but not all the time and I can manage an hour walking the dog without a drink. Alcohol makes my face red, but I thought stuff it on Friday and took some prosecco (used to be a bottle of red, but that's still beyond me) to the hairdressers for my tea time trim. Back to the old me!
I was worried about my voice being scratchy and had a clinic booked with slt for warm up and cool down coaching, but she got covid so I'll chase that again. A slug of Gaviscon before bed and avoiding tomatoes again seem to have helped though.
Had 3 stonking colds this winter, twice ended up on antibiotics, but I think that's more down to the RA meds and being in a school. The RT hangover just seems to be the super human mucous, but the humidifier and douching do the trick.
We've got our 2nd holiday coming up. In the UK with Pip and Nick's daughter, fiance and granddaughter. I've got the greenhouse up and the veg plot is taking shape again after abandoning it for a year. Pip and I walked a marathon last month too (over a few days) and raised money for the Katherine Allport Foundation, they provide care hampers to people in Staffordshire undergoing cancer treatment. I have also finally handed in my assignment for a leadership course I started just before Covid struck. Not that I think I'll use it now as I'm thinking of early retirement rather than promotion! That should give me back some time to update my blog, also contemplating turning that into a book.
So, to sum up, life is pretty good. This Time last year I was in the worst time of my life. If you find yourself there at the moment, it does get better. Shout out, ask for help and there is plenty here.
All the best folks, Gill
So, to sum up, life is pretty good. This Time last year I was in the worst time of my life. If you find yourself there at the moment, it does get better. Shout out, ask for help and there is plenty here.
All the best folks, Gill
Now that should be a pinned post.
Welcome back to the proper world. A step at a time and don’t beat yourself up at every retrograde one is my motto.
Im all set to visit daughter in Berlin. I haven’t been since before I got ill
Enjoy your break Gill
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
