Jaw pain

Hi Debbie. It's likely just the healing and as you say the reduction in your meds. There's no harm in contacting your CNS to put your mind at rest though. Early treatment failure is extremely rare so hold on to that.

Well done on your marathon training. I know how hard it is even without a history of cancer. My marathon medal is rusty now but the memory endures untarnished

Hi

I think the best we can say is that it comes and goes.  You could well be reacting to the draw down of the drugs and I think only time will tell as you get to know how your new body feels.  My tongue often feels like it is swelling and in the past couple of months the tip has become quite tender and sensitive.

I have been there with the all clear only for it to be found a year later so I do understand your anxiety.  Try not to live your life always worrying about what may happen. 

If I am ever concerned I always allow some time to pass (and I have got myself into a state doing that) to see if it settles down.  If I am still unsure then I ring the hospital and they get me in quickly and see what is causing my concern.  Thus far, with 3 false alarms behind me, they have never once told me that I am being silly or wasting their time.  So, if you are unsure and can't wait until your next regular check, give them a ring.

Hi Debbie

I too get a sore tongue/swelling/ear ache/jaw ache etc on and off still.  I have been checked each time and everything looks fine.   

I agree with Dani and Peter.  If you're at all concerned contact your CNS for reassurance - they really don't mind and would rather you are proactive.

Linda x 

Thank you Dani, I’m seeing my consultant on the 6th of May, so will speak to him. I seem to panic every time I get a twinge, which is stupid. Thank you for the reassurance. Wow you’ve done a marathon, well done, I’m looking forward to it, even if I have to crawl over the finish line x

Thank you Peter. My husband tells me off because my operation was 8 months ago, and he said I’m not giving the healing process time. I love how everyone replies and gives the best advice. I know friends and family try their best, but it’s people on here who have been through it and understand more 

Hi Linda. Thank you, I really appreciate the support and advice on here. My husband has hid my torch, so I can’t look anymore. Thank you everyone 

Debbie60 said:

My husband has hid my torch, so I can’t look anymore.

My husband wouldn’t dare.  I still check weekly. I have a torch and an illuminated mirror. My oncologist says it’s a good idea. 

It's not stupid Debbie.  It's perfectly understandable and sensible.

Linda x

Thank you, xx