Update week 3 from neck dissection

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I fell into the 'pit of despair' on Friday - not easy for someone as relentlessly optimistic as me (my husband's description).  However, things are looking a bit brighter now.  I realise that coping with secondaries is a whole different ball game to coping with primaries - I had melanoma and breast cancer in my fifties and despite losing both breasts and a sizable part of my back I came through fine.  This time it's altogether different.  I think my quality of life would be much higher if I had a 'get out of life' pill just in case I felt I needed it.  Sadly no one seems to be selling them yet!

I'm taking each day as it comes and yesterday was a particularly good one.

Maddy

  • Hi Maddy. I’m so glad you had an up day and I hope you have lots more. I had plenty of dark days at the beginning.  I know I haven’t been through your trauma but I focused on not how much life meant to me but on how much I meant to those who loved me, how much of a loss I would be to them. There might have come a time when I mattered more to myself but gladly it never did. 
    Hang on in there 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks, Dani.  I like your approach - I will try to replicate it.  Plenty of fresh air and walking usually does the trick for me and I've just got back, so life isn't too bad today.

    Maddy

  • Hi Maddy. We all have those days in lead up to treatment  I sat on kitchen floor quite a few times at 0300 or so crying. I’m a little  Miss Optimistic glass always half fully type. Once I got head down I just got in with it. Hugs to you from me. I too had 7 lymoh nides affected from my tonsil cancer and her I am 3. 5 years later. Mine were blasted by radiotherapy. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Thanks, Hazel.  I had the op three weeks ago and I think radiotherapy is a possible next step - not sure whether I'll take it or not - I will listen and then decide.

    Maddy

  • Glad you've had a better day Maddy.  Fresh air, walking, gardening - usually does the trick for me too.

    Take it easy.

    Linda x

  • Hi Maddy remember its fine to come on here and shout at us when you need support - we all understand how it is with good and bad days.  Just remember it is still early days post quite traumatic surgery.

    Glad yesterday was a good one and hopefully there will be more good than bad days.  Not everyone goes on to radiotherapy, but there has to be a good reason to either take it or not have it.  Hopefully your clinical team will have some answers for you and you can make a decision that is right for you.  

    Peter
    See my profile for more details of my convoluted journey
  • Thanks, Peter.  I admit I'm not good at dealing with black holes but life is looking brighter now.  I have an appointment with the clinical oncologist soon so doubtless we can discuss options - providing the histology results have come back by then.  I really appreciate your support.

    Maddy

  • Thanks, Linda.  I think you and I have similar souls!  I really appreciate your support.

    Maddy

  • Hi Maddy just trust yiur team to come up with the best course of treatment. Once histology is back they will have a m d t meeting to discuss then you’ll have your meeting. 
    Just rant to us in here when need be 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.