I fell into the 'pit of despair' on Friday - not easy for someone as relentlessly optimistic as me (my husband's description). However, things are looking a bit brighter now. I realise that coping with secondaries is a whole different ball game to coping with primaries - I had melanoma and breast cancer in my fifties and despite losing both breasts and a sizable part of my back I came through fine. This time it's altogether different. I think my quality of life would be much higher if I had a 'get out of life' pill just in case I felt I needed it. Sadly no one seems to be selling them yet!
I'm taking each day as it comes and yesterday was a particularly good one.
Maddy
Hi Maddy. I’m so glad you had an up day and I hope you have lots more. I had plenty of dark days at the beginning. I know I haven’t been through your trauma but I focused on not how much life meant to me but on how much I meant to those who loved me, how much of a loss I would be to them. There might have come a time when I mattered more to myself but gladly it never did.
Hang on in there
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thanks, Dani. I like your approach - I will try to replicate it. Plenty of fresh air and walking usually does the trick for me and I've just got back, so life isn't too bad today.
Maddy
Hi Maddy. We all have those days in lead up to treatment I sat on kitchen floor quite a few times at 0300 or so crying. I’m a little Miss Optimistic glass always half fully type. Once I got head down I just got in with it. Hugs to you from me. I too had 7 lymoh nides affected from my tonsil cancer and her I am 3. 5 years later. Mine were blasted by radiotherapy.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks, Hazel. I had the op three weeks ago and I think radiotherapy is a possible next step - not sure whether I'll take it or not - I will listen and then decide.
Maddy
Glad you've had a better day Maddy. Fresh air, walking, gardening - usually does the trick for me too.
Take it easy.
Linda x
Hi Maddy remember its fine to come on here and shout at us when you need support - we all understand how it is with good and bad days. Just remember it is still early days post quite traumatic surgery.
Glad yesterday was a good one and hopefully there will be more good than bad days. Not everyone goes on to radiotherapy, but there has to be a good reason to either take it or not have it. Hopefully your clinical team will have some answers for you and you can make a decision that is right for you.
Thanks, Peter. I admit I'm not good at dealing with black holes but life is looking brighter now. I have an appointment with the clinical oncologist soon so doubtless we can discuss options - providing the histology results have come back by then. I really appreciate your support.
Maddy
Thanks, Linda. I think you and I have similar souls! I really appreciate your support.
Maddy
Hi Maddy just trust yiur team to come up with the best course of treatment. Once histology is back they will have a m d t meeting to discuss then you’ll have your meeting.
Just rant to us in here when need be
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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