Yesterday was a busy one for myself. Off I went to the mould room in the Beatsons Cancer Unit in Glasgow for a 11.30am appointment. I arrived early as parking was meant to be horrendous, and it was!! No-one mentioned how tight the radiation mask is btw! That was a wee bit of a surprise, but I quickly got used to it. I asked about cutting holes for the eyes, but they said that they would much prefer not to unless I REALLY wanted too.
At 12pm it was then the simulator CT scan, complete with eyeless mask. All went well, including the weird feeling when the dye was inserted. A few minor adjustments then I’m good to start RT at the end of the month.
At 1pm it was a meeting with my Oncologist to discuss the acceptance into the immunisation clinical trial, Compare. The Oncologist was running late and I eventually left the Beatsons at 2.45pm after much form filling and detailed conversations re the trial.
i would like to thank all the Team in the Beatsons for being so kind and helpful with me. 
It was then onto the Glasgow Dental Hospital to check a possible abscess I thought I had after getting 3 molars removed on Monday morning as a preventative measure against ORN that may occur due to the RT.( Google it) I left there at half 4 and straight home for my dinner. I hadn’t eaten all day!
That’s me now sorta ready for the 7 weeks RT & 3 chemo sessions. Only some blood tests and ECG’s to go for the Immunisation Trial & I’m good to go.
Let’s get this cancer beaten!! 
A busy day. Thanks for the update. We’d like more if you’re up to it as time goes on. There’s precious little here on immunotherapy and it’s a common query.
At least you’ll be well looked after and blood sampled I guess
Keep going and keep in touch, Frank.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Yes ORN is a possibility hence the extractions.
Yes. It’s a funny thing, that , isn’t it. Yet there’s lots of research pointing to the fact that if you’re going to get ORN any time after treatment ( and it’s a lifelong risk) you’re going to get it teeth or no. Some centres are keen in lots of pre treatment dental invasion and others less so. Still I guess it’s best to get unhealthy teeth out of the way. I had to have a wisdom tooth out after treatment which worried me no end
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Only if you’re up to it. You need to put yourself first. Take care
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I’m aiming for your Community Champion status girls. Watch this space 
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Tomorrow I start my road to recovery for real. I will have my first dose of the drug Durvalumab on the immunotherapy clinical trial. A 1 hour IV session and because it’s my first time, I will be helld back for a couple of hours to check that there will be no complications. Then it’s Feb 14th for the start of chemo radiation for 7 weeks. Once that’s finished, its more immunotherapy once a month for 6 months. Updates & progress reports will follow in case they can help anyone on their own particular journey.
