Can anyone please help?

Hi Barry

To put it simple it really is temporary My first winter after treatment was hell frozen over Plus it is not just insulation issue Chemo often messes with your sensitivity to certain things and your body might be overreacting It should be temporary as well

Hi Barry, It's really good that you are eating and having your PEG removed, your appetite will come back, and so will your taste. As for the cold, my hands and feet were always cold, this however  did improve and got back to normal, which I'm sure it will for you. You seem to be doing really good, 9 weeks is still early days, give yourself the time you need to recover, you will get there. All the best.

Regards Ray.

Thanks so much. It really helps to hear from genuine experience.

Thanks Ray, that really helps.

Barry

Hi Barry, I've sat in your chair, cold? Freezing. Didn't want to eat,had an n.g tube fitted hated it. I lost 25kg from 90 to 65. . I've put a couple back on but hey I can get into my old clothes now. O used to walk a lot then one day my legs just left me. Beesuit and radioactive raz told me to drink my supplements. It WILL all come together again. Onwards and upwards.

Manup (Paul)

Hi Barry. Keep going with  the eating - just do it because you have to in order to keep getting better-  food is medicine and in time your appetite will return. Mine took about 4 months, but there is huge variation. On the subject of the cold - yes! I was the same. Absolutely freezing from the minute I finished treatment in November for the whole Winter and Spring. I wore 2 pairs of socks, sat in the house in blankets, bought warm gloves but was fine when moving around outside, as long as well wrapped up. oncologist was fairly dismissive and just said to get used to enjoying the Summers and being cold in the Winter - great, could have warned me! But it’s not a problem. I just know to wrap up on cold days and have many pairs of gloves and warm boots. You are doing great - just keep on and know things will improve.

Hilary

Hi Barry. As the others have said our  body thermostat s do go haywire. I feel the cold more even though I’m over 3 years post treatment. It’s one if the many things  we don’t get told. In my case we had the battle if the heating controls that first winter. To be honest I’m not has  bad now. As for appetite it takes a good 6 month for food to have  much appeal   I developed the mantra Food is fuel and eat to live not live to eat. For me I found it easier to have 6 small meals spread out over the day snd top U.K. with endure drinks. Some days it’s 2 steps forward and one back. There’s no quick fix. As fir walking start small go out small walk maybe 100 yards then each day a bit further. You’ll also be feeling radiation fatigue learn to listen to your body if you need a nap take one. 
It’s a marathon not a sprint all you can do is listen to your body’s it needs time to heal. 
Hazel 

Hi Barry. I’ll just add my bit. I couldn’t be bothered with food for nine months. I ate at mealtimes but would have been happy not eating at all. 
I used to go to bed with fluffy PJs socks fleece and a hat  
It does  get better quicker for some slower for others. 

Thanks Hilary, it’s such a great help to hear back from people making similar journeys. 
Best wishes

Barry

Thanks Hazel for taking the time to reply. I’m truly grateful as it does really help to hear from others and understand that these things aren’t uncommon.

I just need to keep going.

Best wishes

Barry