I've still got lymphoedema so have lumps and puffiness in lip, cheek, chin, top of neck but have recently found a lump a lot lower down on neck, just above collar bone about 7 cm off centre, same side as where I had jaw cancer.
Looking on Google (I know, I souldn't) I'm hoping it is just more lymphoedema, lipoma or similar but also think it could be liposarcoma as it says previous radiotherapy treatment is a main cause.
I spoke to my CNS team on Tuesday, emailed them a photo and description and have an appointment with Consultant next Friday
If it is worse case scenario, what treatment do you get if you have already had your 33 sessions of radiotherapy?
Just hang on and keep busy...what else can you do? I'll keep everything crossed for you.
Chemo/immunotherapy but don't think about it
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Not too bad
My consultant had a good look and feel around this morning and doesn't think it's anything to worry about.
He's made an appointment for am MRI scan though so hopefully that will confirm things.
Just hope it isn't on 25th 
Great news. Merry Christmas 
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Quick update on this
I ended up seeing my GP who sent me for chest xrays and Ultrasound scans
Saw my consultant who referred me for MRI scan
Had them all over a couple of week span over Christmas
I didn't hear back about xray, but consultant has confirmed the MRI scan showed nothing to worry about 
I've still got the lump, don't really know what it is, but not worried about it now, I will ask more next time I see consultant in April.
