The Start of Round 2 ? :-(

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I've still got lymphoedema so have lumps and puffiness in lip, cheek, chin, top of neck but have recently found a lump a lot lower down on neck, just above collar bone about 7 cm off centre, same side as where I had jaw cancer.

Looking on Google (I know, I souldn't) I'm hoping it is just more lymphoedema, lipoma or similar but also think it could be liposarcoma as it says previous radiotherapy treatment is a main cause.

I spoke to my CNS team on Tuesday, emailed them a photo and description and have an appointment with Consultant next Friday

If it is worse case scenario, what treatment do you get if you have already had your 33 sessions of radiotherapy?

  • Hi Penrod. Don’t go down the rabbit hole just yet. Keep off google let the experts look at you. There’s possibly surgery or immunotherapy as ways forwards. Yes radiotherapy as we know in same area is usually a one time shot. 
    try to keep busy snd please keep us in loop when you can. 
    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Just hang on and keep busy...what else can you do? I'll keep everything crossed for you.

    Chemo/immunotherapy but don't think about it

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Not too bad

    My consultant had a good look and feel around this morning and doesn't think it's anything to worry about.

    He's made an appointment for am MRI scan though so hopefully that will confirm things.

    Just hope it isn't on 25th  Santa

    Made it to Christmas, made it to my birthday, had a nice summer, made it to my 2nd (and 3rd) (7th) Christmas. 
  • Hi That’s reassuring that the consultant thinks it’s nothing g ti worry about. Go ahead enjoy Christmas and in a way an extra pressie a scan in the new year to reassure you. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Great news. Merry Christmas ‍Christmas treeChristmas tree

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Glad consultant couldn't see or feel anything. Easy to say, but hope that can put you at ease enough to enjoy Christmas. 

    Take care, Gill

  • Quick update on this

    I ended up seeing my GP who sent me for chest xrays and Ultrasound scans

    Saw my consultant who referred me for MRI scan

    Had them all over a couple of week span over Christmas

    I didn't hear back about xray, but consultant has confirmed the MRI scan showed nothing to worry about Slight smile

    I've still got the lump, don't really know what it is, but not worried about it now, I will ask more next time I see consultant in April.

    Made it to Christmas, made it to my birthday, had a nice summer, made it to my 2nd (and 3rd) (7th) Christmas. 
  • Former Member
    Former Member in reply to Penrod

    So pleased to hear this. 

  • Glad to hear the MRI clear!