What a year

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Today marks one year since the 8 minute phone call telling me my MRI had shown malignant lumps in my neck. Then followed the round of biopsies, scans and appointments with tonsil cancer confirmed, again by phone at 4.30 on Christmas Eve. This year (Covid allowing) I'm hoping to be at the candlelit family Carol service at that time with hubbie, stepdaughter and granddaughter- they've been my determination to fight this. 

The year has thrown some of the toughest challenges our way, the only year to compete with it was when my mum died of breast cancer when I was 10. Again, more inspiration to fight it, hence the name of my blog - Not This Time. Link in bio. 

But,  treatment completed April, in Remission since August. I'm back at work. Had my 5th check up this week and so far, so good. Eating is still a frustration, I know I am lucky that swallowing is fine, it's the dryness and texture and I still struggle with acidic or spicy food and alcohol is just not do-able. In the grand scheme of things that's insignificant though. I am still here and living my life. One of the best gifts from this experience is a new perspective,  things that would have troubled me in the past wash off. I no longer apologise for prioritising myself. It's pretty liberating. 

Thank you all on here for your support, it has been so valuable. I just hope I manage to pay back over time. I will get round to adding my blog to my signature, and editing it. Rambling as I wrote it helped me process the whole experience, time now to make it useful. 

It's probably time I unmasked myself, Ronnie is actually the name I gave my RT mask. Signing off my messages as Ronnie became a habit, kind of meant she had the cancer not me. 

No matter where you are in this journey, I send you all my thanks and best wishes.

Take care all, Gill {Ronnie) x 

  • An auspicious day for you Gill! Your updates and comments have been inspiring over the past year and your blog is an excellent read. Here’s to a much happier and more relaxing Christmas Champagne glass (non-alcoholic of course!) 

  • Well done Gill and nice to meet you

    That's a good idea about the blog, an even better place for it is in your profile, just as Mark has done. I signpost lots of people there and I can add yours too. You can understand how much it helps those just starting out.

    Have a great Christmas

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi, Gill  Well done and a very inspiring post for others, your eating will come to back, I thought I would never eat again, now I'm almost back to how it used to be. Enjoy the carol service and have a lovely Christmas. All the best to you and your family.

    Regards Ray.

  • Hi Gill. Welcome as Gill. Yes it’s surprising how dates  stick in our head. Enjoy Christmas Carol service it’s a good tip for everyone starting g treatment heave goals to aim for. 
    onwards and upwards to infinity and beyond.

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Gill, thanks for the update on  your progress.  I've not had cancer myself, but my son has had surgery for cheek and jaw cancer, followed by chemotherapy and radiotherapy.  He is still unable to eat much solid food and still has a feeding tube.  He can't eat anything spicy or acidic, I think it's something to do with his mouth still being so sore that the acid and/or spice irritates it.  This groups has been just wonderful in the wonderful reassuring posts.  Will read your blog with interest, I know my son is making a scrapbook of his experience, and will hopefully write a blog once he joins the group.  Take care, enjoy the carol concert and have a lovely Christmas x

    Janet 

  • Hi Gill and welcome minus your mate Ronnie!

    Wow, where has that year gone?  You've done brilliantly well to get where you are.  I'm sure you'll continue to see improvements over the coming months.

    Enjoy your Carol service.

    Linda x 

  • Lovely post Gill, I wasn't around much when you signed up here because of "stuff" happening in my life plus getting through my second brush with cancer, but great (as always) to read that the lovely folk on here helped you through.

    Lovely name too, my mum was a Gill x

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • My mum's a Gill too but with a J.

    Linda x 

  • Thanks Mark, being a few months ahead with it all still fresh you've been a great help! 

  • Gill well done on your "one year".  Your contributions to the group have been really helpful.  Sounds like you are making great progress.  I hope you can continue to help others starting the process.  Here's to more celebrations for you!

    Peter
    See my profile for more details of my convoluted journey