Hi
As many of you know I’m past 3 years for tonsil cancer with several affected lymph nodes and happily living our lives. At my last scheduled appointment 8 September in i waltzed on my own hubby in car. We were going away a week later and I hadn’t had a face to face since the previous December.Consultant did her usual visual checks then scoped . She discovered a small mucus filled cyst sitting in the top of vocal cord folds ( who knew our vocal cords had folds ) bit like our tonsils having crypts! We learn so much having had cancer.
We had a chat she wasn’t unduly concerned the offending cyst was 5 mm I didn’t know it was there it wasn’t causing any issues.I offered to postpone our trip,no way was her reply she wouldn’t do anything for 3 month anyway. So off we drove to Spain cycled over 1100 km walked over 450 k m.
No issues in fact I am lucky nothing stresses me apart from the day I was put on cancer pathway.
Today was appointment day my hospital has a brand new digital scope that videos as well all in glorious HD. The cysts still there it’s not changed so we’ve agreed to a review at my next appointment which is 6 month now I am past 3 years. With the caveat if I feel I need to see her get in touch I will get an appointment.
Am posting just to let people know that late side effects may occur but our nhs is always there for us.
Whats caused it ,good old dry mouth lack of saliva passing over the vocal cords,have caused friction ,hence the cyst. So keep drinking water I still do 2 litres most days.
Hi Hazel. Thanks for posting this. Mucous cysts are made because minor salivary ducts get blocked and a cyst forms. We have mucous glands all over our mouths and throats.
I too have encountered one which is in my throat. I found it and my oncologist confirmed it. So we are mucous cyst sisters 
They seem quite common
We are told to report anything that worries us and we are not wasting our clinicians time. I think we are largely pretty well looked after.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Try saying "mucous cyst sisters" ten times fast! Quality new tongue twister ladies.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
