HPV16 spread to lung and Bone

Former Member
Former Member
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Hi all I have not been on here for a while as we were getting on with our lives after 2nd lump removed from tongue Mar 20  and  first lump in 2018 being removed from neck followed by radio therapy and chemo we were told after 2nd surgery that they didn't get clear enough margins but they were hopeful they had got all the cancer....but found out last week there is a new lump on the other side of my husbands neck and it has travel to spine and lung all lumps being around 1.5cm.. has anyone else had the hpv16   square cell carcinoma spread ?? can you give us any hope ?? Treatment of cemiplimab is starting in  a few weeks once they have analysed biopsy TIA everyone 

  • Hi cissy sorry about the situation you’re both facing again. There are a few people here with distant mets who have had good results with immunotherapy which is what your husband is being offered. I’m reticent to tag anybody but if you put immunotherapy in the search box at the top and look for the most recent in the advanced search you’ll find a few threads 

    Best wishes. 

    edit
    here you are. 
    Just click on the link 

    community.macmillan.org.uk/search

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Former Member
    Former Member in reply to Beesuit

    Thank u x

  • Hi Cissy Sorry to hear your latest news as Dani says there’s been some good results with immunotherapy. Fingers x for both of you this time round. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.